End of the day Tuesday

The day has drawn to a close. Amanda is in the room with Rebekah. Scott, Sarah and I are in the camping trailer. We hope that she continues to keep her food down and is asleep by now, so that Amanda can have a good night. It is tough enough to sleep when the nurse comes in at least every hour to check on Rebekah's line.

Aunt Tiffany came by this evening and Mom and Dad were able to leave the hospital and go out to dinner, leaving both girls with Tiffany and Amanda. It was nice to have a little break. Thanks Tiff and Amanda! Also, mom was able to get a little nap in this afternoon while Amanda kept an eye on the girls. That was well needed.

Rebekah had some fun today. She was able to get a wagon ride in as well as some time in the play room with a Physical Therapist. She had a harpist come in and play for her and even an opportunity to try to play it herself, although she was more interested in having Sarah play it instead of her. Aunt Tiffany blew bubbles with her and she had an Art Therapist in with crayons and paper. She also got to play with Suzie (a doll that wears hospital pajamas and has a central line). Rebekah can put "op sites" on Suzie and pretend to give Suzie's tubes a drink and all sorts of fun. She enjoys all of the different activities.

Uncle Chuck came out to visit with us in the trailer this evening. Rebekah was already trying to go to sleep (at least we were all hoping that with less commotion in the room, she would fall asleep) and we had headed to the trailer for the evening. It was great to see him.

I continue to be concerned about radiation and pray that it will not be required. There are so many life long issues that Rebekah would have to face if radiation is needed. I don't understand all of the issues that are involved in a decision for radiation, but I do understand that it rests on the surgeon to determine if the entire tumor can be removed. Since it is not a single mass, but has extended out, it is "unlikely" to be able to be removed by surgery. While we are in the hospital for the next round of chemo, they will be doing a variety of scans to determine how the tumor has been affected by the chemo and so that the surgeon can determine what can be done. The next step after that round of chemo will be surgery and possibly the start of radiation. I know that our God can do ALL THINGS. My prayer is that he WILL do this for her.

It's getting late and I need to try to get some sleep.