Friday - Almost Normal and Thank You's!

Today was an almost normal day. And for that we are very thankful.

Rebekah did not sleep that well last night. It is pretty clear that she is not feeling very good over all though when asked if she has any "owies" anywhere she consistently says "no". She ended up sleeping in quite late this morning and also taking a pretty long nap this afternoon. It is pretty obvious that she is not feeling well when she didn't want to play outside or swing - normally she fights to spend any waking moment outside playing on her new play structure.

We are taking great care of her central line. She is not happy about the ACE bandage and/or the amount of tape she has stuck to her middle. When it comes time to give her tubes "a drink" (or actually replace the heparin in her line so it will not clot and block the line) we have to remove 3-4 strips of tape off her her body. Its kind of like pulling off large bandaids and not exactly comfortable - but better than the alternative.

Since we came home we have had help almost constantly and sometimes two people at a time. Amanda was at the hospital for a couple of days and came home with us and spent the night. Grandma A came for a while yesterday. Rebekah's speach therapist came for a while yesterday. Grandma M came yesterday and spent the night and all of today. And finally Ginger Hollis came and helped in the kitchen. Thank You All!

With all of this help we have actually been able to get back to some sort of normalcy. Daddy has been able to get a full day of work in and mommy has also been able to get a few things done including a short shopping trip. Daddy was even able to respond to a fire/ems call which was great. Having some time to do the extras and get back to some of the side things sure is refreshing. What we are saying is that we are very thankful for the help of so many that we have been given a touch of our life back. This does not mean that things won't be tough for us "tomorrow" but keeping in mind what Rebekah still has to go through, we will deal with it.

Finally we want to say thank you to the couple of people that have made donations to Rebekah's Trust today. See www.helprebekah.com for more info on her trust and other ways you can help. This site (now over 1,000 visitors! was created and is maintained by a good friend Steve - thanks. One thing that isn't close to normal is the huge amount of medical and insurance bills facing us. The donations today were just in time to uplift a few spirits on this front and give us some hope. Thank You!

Please pray for Rebekah feeling better and for a continued sense of normalcy in our lives.