Growing Tall

We went to the endocrine specialists today with Rebekah. After being on the growth hormone since May she has grown approximately 4 cm. That's about $2750/cm if you are keeping track! This is a wonderful delight as she was not growing significantly at all previous to being on the daily injections. She was so proud that and keeps repeating "I Grow Tall!" She wants to grow up to be "tall mommy" which we are intepreting to be "as tall as mommy."

Mommy had her first appointment at the ALS clinic today. They repeated all of the extensive and painful electical and needle testing that she went through last week. Since we know that God is in the miracle business and we have people all over the world praying we held a secret hope here that the specialist would come back with "I don't see any ALS, someone must be mistaken. We didn't expect it and it was not to be had.

Unfortunately what he did tell us is that the ALS has progressed from her leg all the way up to the mid lumbar region in her back (middle of her back.) It's hard to say what that means in terms of prospective life span but not being in her back would be much better. As there is no real treatment for this we are scheduled back into the clinic the end of this month to meet with specialists who can help us treat the symptoms as mommy's body shuts down.

Please keep your eye out for some changes here too. Mommy and daddy talked today about what belongs on "Rebekah's Page" and what does not. We don't have the answers for certain but we may just keep a family perspective here and spin off a mommy perspective blog too. Let us know what you as readers would like?

Please pray for God's continued grace, strength and peace as enter this chapter in our lives.