Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Tuesday, September 01, 2009



Growing Tall

We went to the endocrine specialists today with Rebekah. After being on the growth hormone since May she has grown approximately 4 cm. That's about $2750/cm if you are keeping track! This is a wonderful delight as she was not growing significantly at all previous to being on the daily injections. She was so proud that and keeps repeating "I Grow Tall!" She wants to grow up to be "tall mommy" which we are intepreting to be "as tall as mommy."

Mommy had her first appointment at the ALS clinic today. They repeated all of the extensive and painful electical and needle testing that she went through last week. Since we know that God is in the miracle business and we have people all over the world praying we held a secret hope here that the specialist would come back with "I don't see any ALS, someone must be mistaken. We didn't expect it and it was not to be had.

Unfortunately what he did tell us is that the ALS has progressed from her leg all the way up to the mid lumbar region in her back (middle of her back.) It's hard to say what that means in terms of prospective life span but not being in her back would be much better. As there is no real treatment for this we are scheduled back into the clinic the end of this month to meet with specialists who can help us treat the symptoms as mommy's body shuts down.

Please keep your eye out for some changes here too. Mommy and daddy talked today about what belongs on "Rebekah's Page" and what does not. We don't have the answers for certain but we may just keep a family perspective here and spin off a mommy perspective blog too. Let us know what you as readers would like?

Please pray for God's continued grace, strength and peace as enter this chapter in our lives.

13 Shared:

At Tuesday, September 01, 2009 7:29:00 PM, Blogger Debbie Left a thought...

I think you're fine include Mommy's info here, too -- it is, after all, part of Rebekah's life, too.

 
At Tuesday, September 01, 2009 9:36:00 PM, Anonymous Leanne from Pa Left a thought...

I agree with the above comment and praying as always that God will be gracious to you and preform a miracle where Frances is concerned. I was so sorry to get the news from Lori/Ken. We know God is able to do abundently above what we ask. Praising Him for what He is going to do. Jeep on believing.

 
At Wednesday, September 02, 2009 4:44:00 AM, Anonymous Anonymous Left a thought...

Praying for your family, this is the first time I have seen your blog..I think you should post both on here you have a lot going on..remember all things are possible with God!!!!

Erika

 
At Wednesday, September 02, 2009 7:11:00 AM, Blogger erinannie Left a thought...

I have prayed for your family for so long. I won't stop now. Please let us know how we can help.

 
At Wednesday, September 02, 2009 9:00:00 AM, Anonymous Anonymous Left a thought...

I have been following your blog for a long time now. I've never posted before. I hope a miracle comes your way. I think you should keeps this blog for both of you.

 
At Wednesday, September 02, 2009 12:56:00 PM, Blogger Tara Left a thought...

I agree with the previous comments, I think this should be about both Rebekah and Mommy. It is a family blog.

 
At Wednesday, September 02, 2009 6:26:00 PM, Anonymous Anonymous Left a thought...

Please keep this about your whole Family unit. We see you as a whole Family and what makes you happy makes us happy and what makes you sad makes us sad. AND we pray for you all the time. Our prayers are for continuing strength for Daddy too. As care givers ourselves we know that we need prayers as well as the ones who are sick.
We love you and appreciate your witness. You have always helped us ever since we first found your blog after the deaths of our two babies. Your faith has shown a light on our paths for some time...we are praying in Tennessee and Georgia for you whole Family

 
At Thursday, September 03, 2009 6:27:00 AM, Anonymous charles1198 (ktog) Left a thought...

I think it should all be here.

We continue to keep you all in our thoughts and prayers. †

He who dwells in the shelter of the Most High will rest in the shadow of the Almighty. I will say of the Lord, "He is my refuge and fortress, my God, in whom I trust." -- Psalm 91:1-2

 
At Thursday, September 03, 2009 8:50:00 PM, Anonymous Darlene Left a thought...

Leaning on the everlasting arms of Jesus...safe and secure from all alarm. Keep seeking Him.

 
At Friday, September 04, 2009 12:54:00 AM, Anonymous Anonymous Left a thought...

I'm with everyone else.

Thinking of you all.

Praying,
Kelli

 
At Monday, September 07, 2009 9:45:00 PM, Blogger Sara Left a thought...

You are all such a wonderful family - and it has been a true blessing to spend our summer camping with you all. There are no words to adequately express how we are all feeling about Frances' health right now. Please know that we treasure your family - and we wish you all peace. With love,
Eric, Sara, Alexander & Tessa-Lynn

 
At Monday, September 07, 2009 9:45:00 PM, Blogger Sara Left a thought...

Grow Rebekah, Grow!!!!!!

 
At Friday, September 11, 2009 1:58:00 PM, Blogger David Left a thought...

My dear lord Jesus, take this family in your loving hands and gift them with peace and patience, grace and abundant mercy. Be there every moment of every day and in the darkest part of the night, YOU be their light and salvation.

 

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