No Evidence of Disease

No Evidence of Disease. Those are always wonderful words to hear. And this week was no exception to that. It is always good to hear that there are no signs of cancer. We continue to run the risk of Rebekah's cancer returning, but for now it has not and for that we are thankful.

We continue to work with Oncology, Pediatrician, Endocrinology with Rebekah's Hormone issues (specifically thyroid and growth hormones), ENT (Ear Nose & Throat), Eye Doctor, Developmental Pediatrician, and Psychologist (Behavior Therapy) not to mention the therapies Rebekah receives at school. It keeps us busy.

We were able to start Growth Hormone Shots last Thursday. Although we don't use the word shot or poke around her. We call it her Grow Tall Medicine. And she calls it her Grow Tall BooBoo Medicine. With her device (called Easypod), she does not see the needle. She has been a trooper through all of it. She has taken ownership of it and gets the medicine out of the refrigerator, picks where the medicine will go (it can go anywhere there is some fat - just like insulin - arms, legs, belly, etc...), cleans the area with an alcohol wipe and helps push the button to "get" the medicine. She says "owe" and flinches, but doesn't cry and doesn't avoid it. We are very proud of her! After giving her the first dose (which we do at bedtime), she woke up in the morning asking if she was taller. She says she wants to grow as tall as Mommy. She is proud of herself for growing taller. She says "my taller now" as she stretches herself out. We need to get a growth chart, so we can track it and she can see it.

We are still working on the details of paying for the growth hormone shots. It has been a busy couple of weeks for us, so we haven't made much progress. One step at a time...

I've posted twice tonight, so be sure to check out the previous post, too! It will make you think.