Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Sunday, November 16, 2008



Good News!

This past week has been full of good news. We found out Sunday evening (while looking at Saturday's mail) that insurance is going to help pay for the Tango - Rebekah's speech device. They will pay somewhere between $4,000 and $5,000 for the device. The device costs just over $7,000, so we'll need to figure out how to pay for the other $2,000-3,000. We're looking at our options.

Rebekah had her scans on Tuesday. We called clinic Wednesday for preliminary results and spoke with the nurse. She read and then faxed the radiology reports. The short story is that there are no signs of cancer, but there is continued (and even worsened) evidence of sinusitis. We will follow up with the Oncologist Thanksgiving week after tumor board has met to look at the scans, so we'll know more then.

Rebekah saw the eye doctor Thursday. Her eye is looking better. Doc did not see signs of dry eye, like we had two weeks ago. We are speculating that the issues of two weeks ago are probably related to dry eye. We need to continue to use gel and drops, but not as much as we have been. Mostly for symptoms.

Doc wanted to know if Rebekah was complaining about her eye - did she feel something was wrong. At least at the worst of it, she did complain and was rubbing it like it was bothering her. Doc said it was difficult to know, after radiation, how much feeling she might have. So the good news here, is that she seems to at least have some feeling.

Sarah has not had any screaming leg pains in more than two weeks now. I'm still waiting for it to come back, but thankful that it hasn't yet.

Rebekah was invited to one of her classmate's birthday party Friday night. It was a bowling party. Rebekah went and had some fun socializing with her friends, but she didn't want to stay for much of it. It was good to see the kids interacting with her. We met Grandma C at the Bowling alley before the party and sent Sarah home with her. When Rebekah was done with the party, Mommy & Rebekah headed to Grandma C & Grandpa's and the girls got to spend the night. They had lots of fun.

4 Shared:

At Sunday, November 16, 2008 8:52:00 PM, Anonymous Anonymous Left a thought...

WOW! Totally awesome! Praise God and Hallelujah! I am so happy for your great week. I am believing for you that God will provide all you need to get Rebekah's equipment. What a miracle and a blessing.
Love,
Teresa Mathia

 
At Monday, November 17, 2008 6:42:00 PM, Blogger David Left a thought...

will pray for you all tonight

 
At Tuesday, November 18, 2008 7:52:00 PM, Blogger Donetta Left a thought...

Well long time from the last visit. I was thinking about your little family. Sounds like things are improving some. Provisions being met. Those baby teeth are so fun!
I am happy to see good news prevails.
Fondly

 
At Wednesday, November 19, 2008 11:30:00 AM, Anonymous Bev Zimel Left a thought...

Hi all,
I have been hoping and praying that somehow the Tango issue would resolve itself in Rebekah's favor. So glad to read that scans were good and that Sarah's leg pains seem to have calmed down.
Take care and here's wishes for a blessed Thanksgiving for you all.
Hugs,
bz

 

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