Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, August 17, 2009



Double MRIs

Rebekah has her 3 1/2 year post treatment scans on Thursday. It is hard to believe that it has been that long since we finished treatment! We need to be at the hospital at 7:15am to get the xrays (teeth-panorex and chest) and then report to MRI by 8:15. What is different this time is that Mommy will have an MRI at the same time as Rebekah. Rebekah is very excited about Mommy having an MRI at the same time - as long as Mommy goes 2nd. Once Rebekah is asleep, then Mommy will go into her scan and Mommy should be done before Rebekah and definitely before Rebekah wakes up. Daddy isn't sure what to do with himself while he has two girls in scans. Sarah will spend the night with Grandma M, so we won't have to worry about her at the hospital.

Then the following week, Mommy will have more tests and hopefully have some results from the MRI then as well. We'll follow up with Rebekah's Oncologist on Friday August 28th (as well as a regular visit to the eye doctor) and then with follow up with Endocrine on Tuesday September 1st. This will be the first appointment with Endocrine since we started the Growth Hormones. We will have to see what kind of results we are seeing and how they fall into what is expected.

Scan time always raises the anxiety level. This time, with both Rebekah and Mommy having tests, the level of anxiety seems to be even higher. I don't know who coined the term, but 'scanxiety' does seem to fit.

Meanwhile, we are keeping busy. Camp Agape was a lot of fun! There were lots of things to do. Daddy was able to be there at the beginning and at the end, but had to come home and work in the middle. Getting around was a bit difficult for Mommy, but we tried to make the most of it! We got to spend some time with families that we already knew and got to meet some new families.

Rebekah had an adult tooth that was coming in behind the baby tooth. The baby tooth wasn't very loose, so I took her in to see the dentist. With the radiation Rebekah received, she could have issues with her adult teeth so we want to be diligent in checking out potential problems. The dentist had a look and explained that it wasn't that uncommon, but that she wanted us to work on getting the baby tooth out - wiggle and jiggle it every day and it should come out within a month. So we've been working on it. Finally, this past week Rebekah was wiggling it and got it to come out! Way to go Rebekah!

Rebekah was in summer school last week and continues this week. Sarah will start school the week before Labor Day and Rebekah will start just after Labor Day. So we've been buying school supplies and trying to get everything ready for that. We have moved the girls into their own bedrooms and have been working on giving them their own space. That is finally coming together. Mommy & Daddy spent a lot of time on that this weekend.

This weekend, Sarah got to go to Great Wolf Lodge (a waterpark about 2 hours away from home) with Grandma M, Aunt Molly, Uncle Chuck and Cousin Cole. She had a great time! Rebekah is not fond of the water, so she got to spend some time with Grandma A and then ride on top of the Fire Truck in the local parade and have fun with Mommy (and Daddy - although he was working the event with the Fire Department) at the local festival. Rebekah and Mommy also did some shopping - that girl does love to shop!

This coming weekend is our Church Campout. We are looking forward to that! This one is close to home, so that makes it a little more interesting.

Labor Day weekend is the big Candlelighters Family Camp and we are on the camp committee for it. So we are deep in preparations for that, too.

The summer seems like it has flown by. It is hard to believe that we are in the middle of August already.

5 Shared:

At Tuesday, August 18, 2009 12:11:00 AM, Anonymous Leanne from Pa. Left a thought...

It sounds like you are kept busy with all your camping activities. I'm so glad that you have been able to do that. I miss your blogs but I think that must be a good thing meaning things are going well. Sorry to read that Francis is having problems. Continuing to pray that everything comes back well. God bless you all.

 
At Wednesday, August 19, 2009 11:19:00 PM, Blogger Melissa Left a thought...

I haven't been on your blog in awhile. It looks like I'm just in time to pray for you and Rebekah's scans. I will be praying for your family. I pray for clear scans for both of you!

 
At Sunday, August 23, 2009 7:36:00 AM, Anonymous Anonymous Left a thought...

Wow and wow on your level of business this summer! I hope you are enjoying every precious moment and God bless you with true and deep rest in between. Our prayers and continued support is with you.
Love,
Teresa and Jeff M.

 
At Wednesday, August 26, 2009 6:48:00 PM, Blogger Deb Left a thought...

Scott and Frances...I just heard from Lori...

I AM PRAYING!!!!!!!!!...and every person on every prayer list of which I'm a part will be praying soon!!

May the Lord strengthen you and hold you close.

 
At Thursday, August 27, 2009 11:50:00 PM, Blogger Queen on the run Left a thought...

Its been so long since I have stopped in to see how Rebekah is doing..I can't believe sarah is already old enough for school! Has it been THAT long??? I think of you all everyday. I really should stop by here more often.. As always you are all in my prayers.

 

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