Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Sunday, May 20, 2007



Some Last Minute Thoughts Before We Go

As of last Thursday night (today is Sunday), Rebekah’s Make-A-Wish trip is underway. Here is another picture of at her “kick off” party.

Rebekah, Sarah, Mommy and Beth (from Make-A-Wish)Going Through The Goody Bag Make-A-Wish Brought With Them

This should be a fun exciting time and we are hoping to make many posts over the next several weeks with lots of pictures so that we can bring you along for the excitement.

As we have told you from day one, however, this is not just about the good but rather a diary-like blog that lets you into our hearts so here goes. This is difficult. The getting all of the work done in the office so that daddy and mommy can be gone has been difficult and has meant for some very long days the last several weeks. In addition, the whole idea of getting packed to take two “toddlers” and all their stuff across the country for two weeks is beyond difficult. Will it be 6 bags, 8 bags or more? We still don’t know. Mommy has spent the last several days packing and repacking trying to get it right. We are very grateful that Grandma A borrowed the girls yesterday for a day and night at her house. That has helped a lot and even let mommy and daddy go out to dinner alone last night – we can’t remember when that last happened!

The above is just normal difficult. On top of that we are having a lot of emotional difficulties with this. There are a slew of kids that are not doing well right now. Josh, Gage, Rachel, LaBrie (new) and more. We constantly have these little ones on our hearts and tears are often in our eyes. In many ways it does not seem fair to us that we are where we are. It does not seem fair that, at least for now, we only have side effects to deal with. It just comes down to nothing about kiddo cancer being fair. But it is more than this, it is more than just above normal difficult. The most difficult thing is thinking about some of the other kiddos that are now in heaven and thinking about some of them that went home to heaven very shortly after their Make-A-Wish trip. Given where we are in our treatment schedule and how things are going, it does not make a lot of sense but that doesn’t matter. It was easy not to think about these things when our trip was still a long time away. Now that it is upon us, however, all of these thoughts and emotions are just beginning to flow and we are, even if just a little, afraid.

3 Shared:

At Sunday, May 20, 2007 4:36:00 PM, Blogger Eva Left a thought...

I can't imagine the roller coaster of emotions you must feel every day. Thankful for where you are, while also asking "why?" and wanting your child not to have to deal with all this. Thankful for where you are, but also feeling guilty as you see other parents who have lost or are in the process of losing their children. Such a roller coaster that I can't pretend to imagine or understand. All I know is that the Lord is with you every step of the way - watching over you even when you must at times want to be angry with Him. "...For now we see through a glass, darkly; but then face to face: now
I know in part; but then shall I know even
as also I am known" 1 Cor. 13:11 We don't know the "why" of all this now, but we are still seeing but through a glass darkly. God has a plan for all of you - even in all the confusing and frutstating times.

 
At Sunday, May 20, 2007 5:27:00 PM, Blogger My Kid's Mom Left a thought...

Loooking forward to meeting you on Saaturday - I just emailed you with my home phone #.

 
At Sunday, May 20, 2007 5:38:00 PM, Anonymous Debbie Left a thought...

I think your thoughts and concerns are probably completely normal. Thank you, as always, for sharing.

I hope you have a truly wonderful trip and that you'll make dozens of new memories to hold in your hearts. Family vacations, while stressful, can also be a wonderful bonding, magical time -- enjoy!

 

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