Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Thursday, March 23, 2006



Evening Update

Mommy took Rebekah to the oncology clinic today so that they could look at her g-tube site and infection once again, since it was getting worse. They had spoken with the surgeon's office (who had put in the g-tube) and they wanted oncology to look at the sight and also to check the volume of fluid in the g-tube balloon. The volume was good and oncology couldn't tell anything specific from looking at it. So, someone from the surgeon's office came down to look at it. As she looked at it, it didn't look "roaring" so she wasn't ready to switch the antibiotic, at least not yet. The change could be from a reaction to the topical cream that we were applying, so we stopped that. If it gets worse, we need to call the surgeon's office. If it hasn't improved by next week, we should schedule an appointment at the surgeon's office. She has not been running a fever, so I haven't been overly worried about it, but I don't want it to get out of hand. So now we have three doctors to call depending on the circumstance - pediatrician, oncology or surgeon.

We took Sarah with us and let me tell you how much fun it is to be driving down the freeway and have her throwing up in the back seat with nothing I could do for her. Once we got to oncology, I made sure to mention that Sarah was sick and probably contagious, so they took us into a special room that vents to the outdoors (instead of back into the hospital air system). We took some of our own toys so that the girls wouldn't infect a bunch of clinic toys. I really didn't want to cause any harm to any kids whose immune system might be "nothing". Gage was probably still in the hospital, but I didn't want to get anywhere near him since his counts are low. Would have loved to visit with him and his mom, but definitely didn't want to give them what any of us have.

Sarah has continued to throw up most of the day - the last time was around 4 pm. She has wanted to eat, but anytime she eats it all comes right back up, so I haven't let her eat much. The pediatrician's advice nurse said to give her only clear liquids for the first 24 hours and start with very small amounts and if she throws up let her stomach rest for at least a half hour before giving her anything else. She's not been a happy camper. I was able to give her a little benadryl and tylenol and it has stayed down, so hopefully that will help her. I sure hope that tomorrow is better and she can eat a little and keep it down. The pediatrician's office said to expect it to last 3 or 4 days and she might be better one day and relapse again the next day. Ugh!

Rebekah continues to complain about her tummy hurting and pointing to her g-tube. She doesn't want it looked at or touched, but she did want owie medicine on it tonight (so I put a little vaseline on it, which the surgeon's office had said would be ok). She has definitely been out of sorts.

It has been a rough day, but it could be worse. We are home (and not in the hospital) and I have been able to care for them without too much problem. Daddy has been able to work. It hasn't been easy, but we have survived the day. Tomorrow is another day. One day at a time, one hour at a time, one minute at a time... That is all we can do.

9 Shared:

At Friday, March 24, 2006 3:20:00 AM, Blogger Alison Left a thought...

You guys are running the gamut aren't you?!? Wish I was close enough to lend a hand. Prayers will have to suffice....

 
At Friday, March 24, 2006 6:11:00 AM, Blogger Kat Left a thought...

That sounds SO rough. I just wanted to post a note and let you know I'm praying for you.

kat

 
At Friday, March 24, 2006 6:35:00 AM, Blogger RANDI Left a thought...

I really wish there was something more I could do than just tell you that I am thinking and praying for you. One minute at a time is the way make it through!

 
At Friday, March 24, 2006 7:37:00 AM, Blogger Stacey Left a thought...

Hang in there... sounds like you're one tough Mama!!

Still praying for your family!!

 
At Friday, March 24, 2006 12:09:00 PM, Anonymous Anonymous Left a thought...

Praying for a speedy recovery for the sick little ones and for continued strenght for mom and dad. You show such courage and patients through it all, God Bless you abundently. Leanne from Pa.

 
At Friday, March 24, 2006 12:43:00 PM, Blogger JodiTucker Left a thought...

Across the miles, you're still very much in thought and prayer.
Love to you, Jodi

 
At Friday, March 24, 2006 4:11:00 PM, Anonymous Teresa M. Left a thought...

So sorry that the sick bugs made it to your house. Lots of customers in the store the past week looking for things for tummy and sore throats. Been hectic at our house since Josh had his car accident, but all is okay. Pray for God to heal him up and lead us to a good car and good deal. Healing grace and mercy be poured out on your home.

 
At Friday, March 24, 2006 5:34:00 PM, Blogger jel Left a thought...

sorry everyone is sick!
still praying that thing will get better, please know that am think of you guys

((((HUGGs)))

 
At Friday, March 24, 2006 6:33:00 PM, Blogger Eva Left a thought...

This, too, shall pass. Hang in there.

 

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