Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, March 13, 2006



Monday and Packing

It is Monday morning and we are trying to pack and get out.  Always hectic as anyone who travels with kids knows.

First and foremost we want to thank the Dunhams AGAIN for giving us such a nice retreat.  Saturday was nothing but relaxing and a walk in the snow.  Sunday we were able to go see some of Frances’ relatives we don’t get to see often enough and have a small family birthday party for one of them.  When we got back on Sunday Daddy replaced a bunch of light bulbs that were burnt out around the “Cabin;”  we have to at least feel like we are doing something to help while we are here!

The girls are doing wonderful although Rebekah has been complaining a lot more the last couple of days of “owies” in her mouth.  Not sure what that is about but Tylenol is taking care of it which is good.  Sarah is picking up so many of Rebekah’s habits (good and bad) and that is cute to see.

Finally thank you all for your comments and support on the learning issues.  Of course you are all right on and we know that.  The problem, always, is absorbing that and accepting it.  In quite a few ways we feel like we did at her initial diagnosis with fear, frustrations, anger etc.  We do KNOW that God is faithful and whatever His will is will be done and He will provide us the strength to get through it but it is still difficult.

Pray for safe travel as head home late this afternoon.

7 Shared:

At Monday, March 13, 2006 12:02:00 PM, Blogger jel Left a thought...

Glad you all had a good time,

and will be praying for a safe trip home !

God's speed
and God bless

huggs

 
At Monday, March 13, 2006 2:42:00 PM, Blogger erinannie Left a thought...

I know I'm just a complete stranger who reads your blog daily, but I have to ask you if you have ever heard of Ataxia Telangiectasia? I volunteered with the A-T Children's Project several years ago. Rebekah's situation just sounds so much like this very rare disease, that I can't help but wonder if she might also have it. The CP, cancer, delayed development. Its all indicative of A-T. Here is the link to the AT Childrens Project- http://www.atcp.org
(WebMD has a terrible description of the disease.) Even if Rebekah does not have A-T, I am sure you will relate well to the parents who must deal with it.

I am sure I have a very limited perspective here. But I just can't help but wonder! I pray for you and your family each day. Thank you for allowing complete strangers to share in this experience. You have no idea what it has meant to me.

 
At Monday, March 13, 2006 4:18:00 PM, Blogger steve Left a thought...

God is faithful Scott. You guys know this. He already knows the outcome. Prayers for you guys as always

 
At Monday, March 13, 2006 9:36:00 PM, Blogger Darlene Left a thought...

It's too bad that you're leaving already. Packing up with children in tow is like launching the space shuttle.

 
At Monday, March 13, 2006 10:12:00 PM, Blogger Rebekah Christine Left a thought...

erinannie - you are not just a complete stranger. We love your blog as well and very much appreciate your support and thoughts.

Yes, we have looked at A-T extensively. I don't remember who, where or what but it is something that we have researched and brought up to our oncologist several times and, though I am completely brain dead right now and can't remember all of the details, I remember there being some significant "missing" details.

-Scott (Rebekah's Daddy)

 
At Tuesday, March 14, 2006 3:26:00 AM, Blogger jel Left a thought...

Hi Scott, I take it from you post, that you all made it home safe and sound :)

hope ya have a great week!

huggs 2 all

God bless

 
At Tuesday, March 14, 2006 7:00:00 AM, Anonymous Teresa M. Left a thought...

I am glad you had a great family time away. God's grace and love abound in every way today. :)

 

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