Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Sunday, March 05, 2006



Rebekah Gets a Bath

It has been a busy, social weekend.

Friday night, friends Jeff and Teresa (and their kids) brought dinner out to us. We enjoyed the company and had a wonderful meal. It was very thoughtful. We had time to sit and have some friendly conversation and that was great. It has been a while, since we've been able to do that.

Saturday, we did some work around the house (inside and out). We called our friend Rae and asked if she might be able to help us change out Rebekah's G-Tube, so that we could get a good "lesson" on doing it. It really needed changed and Rae has changed a lot of them. It worked out and Rebekah did a GREAT job helping with it. Thanks Rae for your help!

We put both girls into the bathtub together. In the last 11 months, Rebekah has been in the bathtub twice. With her central line, it had to be well protected so that it didn't get wet (saran and more tape, which always irritated her skin) and then her dressing had to be changed afterward (which she detested). Now that her central line is out, she can go back into the tub. She is ok to be in the tub with the G-Tube. The girls seemed to enjoy the bath. Sarah would do anything Rebekah was doing. If Rebekah splashed, Sarah splashed. If Rebekah kicked, Sarah kicked. Rebekah poured, Sarah poured. Sarah is always trying to imitate her big sister.

Then in the evening, we headed to Grandpa and Grandma C's for dinner and it was delicious. We got to see Cousin Jacob and Cousin Michael and Aunt TT and Uncle Mark. The four kids enjoyed playing together. After dinner, all the kids got fresh diapers and into jammies and we headed for our homes. Grandpa and Grandma C gave us Grandma C's old car, so we have one that gets better gas mileage for running around. Thanks, so much Grandma C and Grandpa.

Today, Daddy's Fire Department was having a Pancake Breakfast. Daddy was up early and off to help with that. Grandma A came to the house about 11 and she, Mommy, Rebekah and Sarah headed to the Pancake Breakfast (we called it brunch). Rebekah didn't want to sit and eat, but was happy walking around with Daddy and being social. Sarah ate just about everything on her "child's plate" - eggs, sausage, and a pancake. She loved the strawberries for the top. Grandma A came back to the house with us (the girls) and watched the girls (the little ones) so Mommy could rest a bit.

Tonight Grandma M brought out some dinner and hung with us for a bit, played with the girls and helped get them both to bed.

Thanks to all of you who added your thoughts about potty training. We'll have to see how it goes.

Rebekah has a nasty diaper rash, fueled by some diarrhea. I'm working to get rid of it, but it hasn't happened yet. So, please pray that it heals quickly. If it doesn't start to improve, I'll need to call the doctor - I'm just not sure which one - the oncologist or the pediatrician.

Last night at dinner, Rebekah ate an entire container of Baby Yogurt. That was 120 calories or 1/2 cup worth of her nutrition. We are thankful for the good things.

Mommy and Daddy are still not feeling great. It is winter, and that will happen. I'm not sleeping too well, but not exactly sure why - some of it is girls waking me up, but there are other times when I wake up and just can't seem to fall back to sleep. Ugh! One day at a time...

Daddy joked with me this afternoon, when I started writing this post, by asking if I had enough time to finish it before I went to bed. It takes me a while to write what I want to say, especially if I'm being interrupted by kids or anyone or anything else. I started this post a little after 5 and I'm just now finishing it up at 8:40 with lots of interruptions and breaks. Guess his question had some merit. Hope you all had a great weekend!

6 Shared:

At Sunday, March 05, 2006 11:22:00 PM, Blogger MAK Left a thought...

How wonderful that you have the support of such fantastic grandparents and friends. It is nice to hear about normal happenings such as taking a bath. I hope things continue to improve for you all and that potty training comes easy and quickly.

 
At Monday, March 06, 2006 2:36:00 AM, Blogger Alison Left a thought...

Bananas for diahrea!!!

 
At Monday, March 06, 2006 3:32:00 AM, Blogger jel Left a thought...

thank God for grandparents,& friends! sounds like ya have a good weekend :)

for diahreal, the dr, told me to do the BRAT deal,
Bananas
rice
applesause
tea
that will take care of it. praying for the 2 of you to get better! :)


praying for a great week
huggs

 
At Monday, March 06, 2006 7:07:00 AM, Anonymous Teresa M. Left a thought...

Jeff and I and our kids totally enjoyed our visit with you on Friday night. We don't socialize very often because of Jeff's hectic schedule,so it was a great family outing for us as well. Thank you for having us over and sharing your time with us.
Jesus, touch Scott and Frances, restore and adjust any imbalances in their body that is keeping them from feeling well and from getting rest and sleep. Continue pouring into them your patience and wisdom and knitting them together with your perfect love.Amen.

 
At Monday, March 06, 2006 7:32:00 PM, Blogger Lindsey @ Enjoythejourney Left a thought...

I found your blog through another blog's link. Your daughter is just beautiful. You have reminded me to love the pieces out of my kids on a daily basis.

Know that someone in NC is praying for you!

 
At Tuesday, March 07, 2006 1:36:00 PM, Blogger My Kid's Mom Left a thought...

The simple pleasure of two sisters taking a bath together - that makes me smile just thinking about it! Hope things continue to go well.

 

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