Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Thursday, February 23, 2006



Build a Bear, Shopping Trip, Doing Well


This gift card came in the mail this week with a letter explaining that they had heard about Rebekah's health issues and wanted to give her a gift card so that she could create a bear. Thanks to Denise aka The Queen for contacting them, that was a really really nice gesture! One day soon we should be able to get out and use it. When we ask Rebekah if she wants to go Build A Bear, she says that she wants to build one for "Chi Chi" (her sister).

It has been a good few days. Rebekah is continuing to eat and it seems like more and more each day. The other night for dinner, she must have eaten between a quarter cup and a half cup of food. She just continued to eat and eat and eat. It amazed both Mom and Dad. We just watched with joy in our hearts and tears in our eyes.

I made the mistake of trying to cut the amount of dilution in her food yesterday and it promptly came back up. Ugh! I did manage to get her away from the white couch and new carpet and before it all came up. And she (sort of) cooperated with using the yellow bin instead of pushing it away completely. So we didn't have quite as big of a mess to clean up. Afterwards, she did a great job of helping with a sponge bath (always a good idea after throwing up allover herself). I guess she still needs her nutrition diluted. One lesson learned.

Today, Mommy and the girls went shopping. It has been such a long time since we've really been able to do that. It felt good to get out of the house and not have to worry so much about who Rebekah might come in contact with and what she might "catch" while we are out.

We went to Toys R Us - not the best place to take two kiddos. They kept wanting to divert Mommy and I think would have tried to buy the store out, if they could have. As much as I might like to buy them everything they want, I just can't afford to do that. We did need a few things though, like potty training supplies (so we can work on that one day soon) and placemats for on the table (which they don't carry) and some other things. I was able to use some gift cards that we had been given. It is always great to be able to get the things we need with gift cards.

Then we went to Target and picked up a few more things - a watch for Mommy (my old one is irritating my skin and the giver of the gift card told me I was supposed to buy something for me), some Dora placemats, and a Dora backpack for Rebekah to take to school with her when she goes back next week (her old one broke a strap). In case you didn't know, Rebekah loves Dora.

We are so thankful for all the love and support we have received and continue to receive. It is such an encouragement to us. Thank you for everything you do for us!

Next Wednesday morning, Rebekah will have her kidney test done, which requires anesthesia and then Rebekah's central line will be removed next Thursday morning. We were hoping to get them both scheduled for the same day, but no luck. Next week will be a busy week: Monday is speech therapy and school, Tuesday is physcial therapy evaluation and ENT evaluation, Wednesday is kidney test and maybe school, Thursday is central line removal surgery and Friday is occupational therapy evaluation. I guess we'll have to wait and see how we all hold up after all of that.

We are so excited to hear that Oliver is in REMISSION and he got to go home for about a week (if all goes well). Please continue to keep him and his family, as well as all the kiddos fighting cancer, in your prayers.

6 Shared:

At Friday, February 24, 2006 5:19:00 AM, Blogger My Kid's Mom Left a thought...

Hi there: I continue to be amazed at the progress Rebekah is making. Praise God! Doesn't it feel wonderful to do things that other people just take for granted? Have a really nice weekend.

 
At Friday, February 24, 2006 6:28:00 AM, Anonymous Anonymous Left a thought...

So glad that you got to have some fun shopping. I know the kids where happy to be together with mom. Will continue to pray for an easy week ahead although it will be a busy one. Leanne from Pa.

 
At Friday, February 24, 2006 6:28:00 AM, Anonymous Teresa M. Left a thought...

Thank you for sharing your wonderful day out!Another breath of some normal behavior patterns returning to your lives. God is so very good, He is so very awesome and amazing. I hope you have many more "normal" family days as God continues to embrace you all with His love and healing power in the days and months to come.

 
At Friday, February 24, 2006 7:51:00 AM, Blogger Mike&Mari Left a thought...

I am so glad to hear that Rebekah is eating! What an answer to prayer. She will love Build a Bear, what an amazing gift. My heart and my prayers are still with you daily. Mari

 
At Friday, February 24, 2006 1:16:00 PM, Blogger Dawn Left a thought...

What a wonderful post. So glad Rebekah is doing better. Will keep on praying for you guys!

 
At Friday, February 24, 2006 3:53:00 PM, Blogger thequeen Left a thought...

The pictures below are so cute!
She looks so much better now.
Sometime in July we are making a trip to California. I would love it if we could stop in and say hi and give hugs.
I hope Rebakah has fun building a bear. She is so sweet to want to make it for ChiChi:)

 

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