Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Tuesday, February 21, 2006



Tuesday Noon and Results

Sorry for the double post this morning - don't know why it did that. It said the first one didn't "publish" so I did it again...

We are back in what, since radiation at least, was one of the shortest anesthetics/surgeries that we have had. Debbie, God-Sent Debbie, came and got Sarah while we were in the waiting room at 7:15 am and brought her back after we were done about 10:30.

Things were a little rough with the anesthesiologist. We did not know him and he did not call last night to talk about Rebekah and what was happening or what we wanted. He was a bit put off by daddy taking care of "his stuff," connecting lines, prepping Rebekah and such. Daddy could see that he was getting short and apologized for "stepping on his job" but daddy also told the doctor that we were going to control as much of Rebekah's treatments as we could. Things went okay. Rebekah went out real well and woke up pretty fast - though extremely grumpy.

Rebekah was so grumpy that there was no consolling her nor changing her out of the hospital jammies so she came home in them. Just another set to add to the collection we guess. She continued to be a bit grumpy for most of the way home and was pretty upset at mommy who gave her the "red" owie medicine (Tylenol) and not the "blue" owie medicine (Morphine). By the time we got most of the way home, however, she had calmed down and was even doing well enough for a short visit at daddy's fire station and then home for a quick tummy tube snack and now off to sleep.

The results. This is good and bad news. The good news is that her vision does not appear to be physically affected by the radiation. Or in other words, there is no apparent damage and all things that they can test for seem to be working correctly. It is not a guarantee that she can see 20/20, but it is a step in the right direction. The tear ducts are a different story. The tumor and then radiation has left a "hole" of atrophied (dead) tissue between her tear ducts out of her eye and her sinuses. It is not that the ducts are "blocked," it is that they are not there. Significant surgery is going to be required to repair/recreate all of these ducts. For now the only "side effect" of this is that she is constantly tearing or crying out of her left eye. As long as that does not start to get infected we will leave the major surgery until other majory surgery in necessary to correct bone/jaw/face defects and/or growth issues. It may sound weird but we are actually grateful that this is "all there is" with regard to this issue.

Continued prayers for side-effect issues and continued cancer free. And while you are reading, head on over to Josh's site (link on the right) and read what his mom, April, wrote yesterday about not respecting cancer. It really affected me.

11 Shared:

At Tuesday, February 21, 2006 12:51:00 PM, Blogger Tammy Left a thought...

I just got all caught up, then very choked up! God is good :)

Bless you all!

Much love

 
At Tuesday, February 21, 2006 1:47:00 PM, Anonymous Anonymous Left a thought...

will be praying,
thanks for the update
huggs
janice

 
At Tuesday, February 21, 2006 2:29:00 PM, Blogger thequeen Left a thought...

I will always pray for Rebekah

 
At Tuesday, February 21, 2006 3:08:00 PM, Anonymous Sarah Left a thought...

Praying for you....

 
At Tuesday, February 21, 2006 8:21:00 PM, Blogger My Kid's Mom Left a thought...

Thanks for the update. Prayers are still coming!

 
At Tuesday, February 21, 2006 8:43:00 PM, Anonymous Anonymous Left a thought...

Thank you so much for keeping up the blog. It helps us know how to pray specifically. And what a strong message from Josh's mom April! I'm going to print it out and send it to a friend battling colon cancer. Thank you for bringing it to our attention.

Keeping you all in prayer,
God bless!

 
At Wednesday, February 22, 2006 12:00:00 AM, Anonymous Anonymous Left a thought...

Dear Scott and Francis, We are so happy to hear that the results were good for Rebbekah. REMISSION is our favorite word! Love Jill

 
At Wednesday, February 22, 2006 12:22:00 AM, Blogger Marla Bean Left a thought...

I'll be praying!

 
At Wednesday, February 22, 2006 4:39:00 AM, Blogger Jayleigh Left a thought...

While I read this post, I am listening to a recording of "Great is thy Faithfulness" and I am thinking HOW TRUE!

God is amazing. There's nothing He cannot do.

 
At Wednesday, February 22, 2006 8:52:00 AM, Blogger Alison Left a thought...

Here and praying!

 
At Thursday, February 23, 2006 8:40:00 AM, Blogger Heather Left a thought...

I sent a prayer up for Rebekah today. Keep going little angel! You are so brave and strong! I will pray a special hedge of protection around you from infections, and cancer.

 

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