Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, February 13, 2006



Normal?

Warning - random free flow of thought and emotion follows:

I wish I had a camera. Just by looking at her you can tell that Rebekah dressed herself this morning - in reality she picked things out and mommy dressed her - mostly. She wore pink socks, red sweat pants, blue fire department shirt, and a purple and pink "Dora" vest. The latter she put on by herself placing an arm through each arm hole with the vest upside down and then lifting it over her head and amazingly it came out right. She asked daddy to help her zip up the vest and then proudly pointed to the Dora picture and then to herself saying "Doh Doh, Doh Doh" Now you have to add the big brimmed multi-color beach hat and daddy's big slippers. She walked (a loose term) around the room looking like a beautiful little clown.

Sounds normal for a 4 year old huh? As I was looking at her that is what I kept thinking; at least what I wanted to be thinking. It struck me that in addition to the above she was using her right hand to push her IV Pole, complete with food bag and tubing running to a hole in her stomach where she eats, and had her G-Tube feed tubing wrapped up in a loop (to make sure she didn't roll over it) in her left hand. In everywhere we look, everywhere we go, everything we do we are reminded that things are not normal no matter how much we try.

This weekend at the snow outing we saw Josh and his family. Josh looked great and really seemed to be enjoying himself. You could not help but notice how blushed his cheeks were in the cold and, oh ya, the tube running out of his nose and taped across his face that he receives his food through. And his dad who couldn't leave Josh's side by more than 10 feet because he had an electric pump that might need to be used to suction out Josh's trachea at any time.

As we went inside the warming hut there was food, food and more food and everyone kept asking Rebekah what she wanted to eat and she couldn't eat anything. Last week we went to Costco and the "sample ladies" were out in force. One young, well meaning lady offered me a snack and when I took only one proffered "your little boy can have some too." When I politely said "She can't eat anything right now" the same lady insisted that "it would be just fine for her, really it would."

Regardless of what happens in tomorrow's meeting with the results of Rebekah's tests, can we ever return to NORMAL? Can we?

12 Shared:

At Monday, February 13, 2006 3:22:00 PM, Blogger MAK Left a thought...

What is normal anyway? Lots of things look "normal" on the outside but inside it is a very differnt matter. I know this is hard for you and your family but don't lose hope. We care and we are praying for you and your family.

 
At Monday, February 13, 2006 7:41:00 PM, Blogger My Kid's Mom Left a thought...

Tough philisophical question. But the longer I live, the more I realize that "normal" doesn't exist. Different things happen to us in our lives which either makes us stronger or breaks us, and we are never the same after that. This experience has caused your family a lot of pain and anguish. It has also brought you many caring friends from all over the world who love and admire you, and who pray for you on a daily basis. WE ARE ALL IN THIS TOGETHER WITH YOU GUYS. Please do not despair. God is here with you, too. I'll be praying even more so tonight!

 
At Monday, February 13, 2006 10:14:00 PM, Blogger Deb Left a thought...

Psalms 42:11 "Hope thou in God: for I shall yet praise Him, who is the health of my countenance, and my God."

Isaiah 57:19 "Peace, peace to him that is far off, and to him that is near, saith the LORD; and I will heal him."

Deuteronomy 7:15 "And the LORD will take away from thee all sickness, and will put none of the evil diseases of Egypt, which thou knowest, upon thee."

Those are just a few of the scriptures that I pray over Rebekah daily. Remember, Hebrews 13:8 "Jesus Christ the same yesterday, and to day, and for ever." He is able!!!

Praying for peace, peace, peace --and a miraculous good report!

Blessings,
Deb

 
At Tuesday, February 14, 2006 1:24:00 AM, Anonymous stephanie Left a thought...

i could never imagine what you all are going through. From what i see you are all very strong. keep strong and god bless you and your family. Rebekah , you are a very gorgeous little girl.

 
At Tuesday, February 14, 2006 3:37:00 AM, Blogger Paula Left a thought...

If it's God's plan, you can and you will. Love and hugs and prayers today. Dear Lord, I pray for good test results. I pray that some day soon, all this pain will be behind Rebekah and her sweet family. God bless her mama and daddy and sissy. In Jesus name I pray. Amen



Your Sister In Christ,

 
At Tuesday, February 14, 2006 3:42:00 AM, Blogger Paula Left a thought...

I posted about you today and asked my readers for prayer.

Love In Christ,

 
At Tuesday, February 14, 2006 3:45:00 AM, Anonymous Anonymous Left a thought...

I Think abbynormal, is all right,:)
being normal is soooo over rated !

Happy HEART DAY, everyone
will be thinking, and praying for you,
today, know GOD is with you today, and always
huggs
janice

 
At Tuesday, February 14, 2006 4:17:00 AM, Blogger JodiTucker Left a thought...

Praying right now before I go to work for all of you. Then, praying some more while there and knowing this will be a Valentines Day like no other you have had as a couple or as a family. Prayin with love, Jodi

 
At Tuesday, February 14, 2006 6:51:00 AM, Anonymous Anonymous Left a thought...

Praying today will be the best Valentine gift you will ever get. God is able to do immeasurably more than we can imagine. Love to all of you. Leanne from Pa.

 
At Tuesday, February 14, 2006 8:00:00 AM, Blogger Mike&Mari Left a thought...

I think Rebekah is doing an excellent job of being "normal" in her situation. She is a fighter, and doesn't give up. Her smiles and the story of dressing in all those colors, I wish I could have been there to see her. To me she is normal and nothing is going to slow her down, she is a courageous little girl. We are praying for great test results on this Valentine's day - may you receive the news you want to hear, and remember we are all waiting with you, all of whom Rebekah has touched - now think of how abnormal that is, for a small child to be able to bring this many people together. That is from God!! Love to all.

 
At Tuesday, February 14, 2006 8:31:00 AM, Blogger Dawn Left a thought...

Sounds to me Rebekah is truly blessed to have the parents, friends and love she has! May today and everyday be a true blessing for all of you. Praying for good test results and a Happy Valentine full of love!

 
At Tuesday, February 14, 2006 10:46:00 AM, Blogger Darlene Left a thought...

I'm praying for you today. I hope the results are good.

 

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