Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Tuesday, September 20, 2005



Tuesday Morning

Yesterday we packed up and tried to be out the door by about 8:00am with both girls, the trailer, etc. all ready to be gone for a week plus.  

At 9:30am we had an appointment with a photographer for Portland Monthly magazine.  They are doing an article on Kory’s Foundation, a SPECTACULAR organization that helps families with the same type Cancer Rebekah has.  They have helped us SO SO much and the only reason that daddy is able to be at the hospital most of the time is because of them.

At 10 we were in clinic getting blood and other labs tested and being readied for admission.  Rebekah’s blood counts came back okay and after about an hour and half we were admitted to room 3522 in the school age wing.  Rebekah got her dressings changed which is always a traumatic event as it is somewhat painful and hooked up to all of her tubes, bags, chemicals, etc. and we were on the way towards another week of chemotherapy.

Please note the picture on Rebekah's wall next to her bed. This was done by a friend that we have not met, Lilly (I hope I have that name right but I forget for sure right now). She asked her mommy's friend, who is a nurse, to bring it to us here at the hospital and Rebekah, who normally does not like pictures that close to her bed really wanted it it right there!


While we are here this week, probably today, Rebekah is going to have to have a catheter put into her bladder to collect her urine for some testing.  As part of the chemotherapy protocol they need to observe how her kidneys are functioning or how they are being affected by the chemicals.  They collect for a 24 hour period.  This will be fairly difficult for her – yet another tube coming out of her.  This will make 4 invasive tubes into her body at one time.  Pray that she tolerates this well.

About noon yesterday friend Debbie came and took Sarah home for a couple of days.  Debbie lives pretty close here and her family seems to need a baby fix so they can have Sarah for a couple days.  That will definitely fix her fix!  Thank you Debbie and family.  Later this week Ginger and family will have Sarah and then hopefully some grandparents will have her into the weekend.  It is definitely hard finding 24 hour/day babysitters for weeks on end and it is even harder being apart from your little girl like that.  

6 Shared:

At Tuesday, September 20, 2005 8:19:00 AM, Blogger Alison Left a thought...

Praying that you will feel some peace this week.

 
At Tuesday, September 20, 2005 9:21:00 AM, Blogger Valerie Left a thought...

Yes, it is difficult being away from one daughter while attending to the needs of another. I shall continue to keep you close in prayer.

 
At Tuesday, September 20, 2005 11:24:00 AM, Blogger Katie Left a thought...

Rebekah and your family are never far from my mind and always in my prayers.

 
At Tuesday, September 20, 2005 1:56:00 PM, Blogger steve Left a thought...

praying for you guys this week. Hope all runs smooth.

much love my friend

 
At Tuesday, September 20, 2005 2:56:00 PM, Anonymous Anonymous Left a thought...

praying for you all
give each other a big hug for me
praying in missouri

 
At Thursday, September 22, 2005 4:58:00 AM, Blogger Jenny Left a thought...

God bless mommy and daddy having to be away from little Sarah. May your hearts be light, knowing she is receiving the best of care.

God bless Rebekah and heal her little war-ravaged body. Make her like new.

In Jesus name, Amen.

 

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