Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Wednesday, February 10, 2010



Rebekah - NED

We saw the oncologist today to follow up on last weeks scans. All of the scans (MRI, Panorex, and Chest Xray) look stable (no significant changes from previous scans). So that means No Evidence of Disease (NED) which is a good thing. Doc didn't have the results from the heart tests so he will work on getting those for us.

Rebekah has, for the last few days, had a red puffy eye. Starting last Friday she was sneezing, but that has changed into green goop in her nose with her nose running. The oncologist didn't like what he was seeing there.

I talked to the oncologist about the eye and nose. And explained to him that we were scheduled to have Rebekah's hearing tested tomorrow and see the ENT. He said he would cancel the hearing test. He did suggest that we see the ENT and get his advice on the eye and nose issues. The oncologist wrote a prescription for an antibiotic, but said we should talk to the ENT first and make sure he thought it was appropriate. So I'll need to cancel the hearing test, but keep the ENT appointment. Something to do first thing in the morning.

Because of the cold, we took some of our own toys for Rebekah to play with. Rebekah picked them out last night. She did a really good job of sitting in a chair and playing with her things and listening to Mommy when Mommy said she couldn't play with some of the toys there and she couldn't go into the playroom, etc... Mommy was very proud of her.

Life is interesting when Mommy is taking Rebekah to doctor's appointments. If we are at a hospital, Mommy can get help from the Valet staff or Security or Transportation to get the wheelchair out of the van. Both Rebekah and Sarah are doing a better job of staying with Mommy and not running off ahead. So at least at this point Mommy can still take Rebekah to her appointments. One step at a time...

Tonight as the girls were getting ready for bed, Mommy asked Sarah to help her out. Sarah took an empty laundry basket into the laundry room and got the clothes out of the dryer and then took the clothes out of the washer and put them into the dryer and then brought Mommy the basket full of clean/dry clothes. She really likes to help Mommy. Mommy appreciates the help both girls give. They both like to take Mommy's dishes to the sink or get something for Mommy. They are definitely big helpers.

4 Shared:

At Thursday, February 11, 2010 9:04:00 AM, Blogger Debbie Dunham Left a thought...

Your girls will grow up to be strong, capable, caring women.

 
At Thursday, February 11, 2010 3:50:00 PM, Blogger Char Left a thought...

Hallelujah for NED!!! Praying for strength for Mommy, and peace for Daddy. Our God reigns.

 
At Friday, February 12, 2010 8:03:00 AM, Anonymous Leanne in Pa Left a thought...

Although I don't comment as often, I check your blog regularly and contine to pray for your family still expecting a complete healing for Francisis and strength for all of you as you walk through this journey. So glad to hear the good report on Rebekah, she is a wonderful young lady and I agree that they will grow up strong women. I admire you for the way you are cooping. Keep trusting in God, He is in control and sees your need.

 
At Wednesday, February 24, 2010 9:10:00 PM, Blogger Bekah Left a thought...

Oh my goodness! My name is Rebekah and i have a little sister, Sarah! I read that and felt that i had to comment on it! I hope that your girls grow up and lead a successful life and i will pray for you and your family! God bless!

 

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