Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Tuesday, May 09, 2006



Busy Days

We continue to be pretty busy around our house. Will it ever let up? I doubt it. This week might be a little quieter than last week. Right now, I have two days with nothing scheduled for the girls, so maybe we’ll have a couple of quiet days at home.

Rebekah seemed to enjoy going to see the horses on Friday. We’re trying to see about getting her scheduled for some sessions, but we haven’t gotten that done yet. The therapist that we are hoping to use is working on a degree in Speech Therapy and has been working with Rebekah’s physical therapist with hippotherapy (a combination of horse riding therapy and physical therapy) so she seems like a good fit. Horse Riding can be great for strengthening muscles, hand/eye coordination and balance – all things that Rebekah can use help with.

Jacob and Michael (or as Rebekah would say “two”) came out Friday for a play date (along with Aunt Tiffany). The kids all had fun. For a while, they played Elefun (the butterfly catching game) and seemed to enjoy that. They would all help get the butterflies back into the elephant for the next game and all (the older 3 anyway) took turns turning it on.

Saturday, Daddy was gone most of the day. By midday, Rebekah was getting pretty cranky. I tried a couple of times to get her to take a nap (to try to alleviate the crankies), but it didn’t work. We did some coloring and played with playdough and that helped a little. Playdough play is good strengthening play. The girls liked the playdough “cookie cutters”. Then, we decided to go outside and play for a while. As we were getting ready, there was a knock on our door. Some of the neighbor kids brought down their new puppies to show Rebekah and Sarah. The girls liked the puppies, but were more interested in playing.

Saturday night, we went out to eat with Grandma M. By the end of dinner, Rebekah was melting down. Mommy didn’t get to finish her sandwich before we had to go, so I had it for a late night snack.

Sunday, we went to Gales Creek Church. They have been praying for Rebekah and several of them have helped us out. It was good to be in church and worship. They are a very friendly church. They insisted that we stay for potluck afterward, but we had to get home.

Sunday afternoon, Uncle Chuck, Aunt Molly, Cousin Cole, Grandma M and Grandma A came out for a barbecue. Rebekah had been talking about Cole for a couple of weeks, so we thought we would try to get them together.

Potty training continues. She wanted to give her sticker papers to Grandma M, Uncle Chuck, Aunt Molly and Cousin Cole (Grandma A had already left). Often, while Rebekah is sitting on the potty, Sarah will be in the bathroom with us. Sarah, sometimes, wants to sit on her potty, too. Sarah thinks that she needs all her clothes off (except maybe socks) in order to sit on the potty. It is kind of funny, but cute.

The other day, she sat for a couple of minutes and she had gone pee into the potty. She got big praises and got to pick out two stickers for her paper – one for telling Mommy she needed to go potty and one for going pee. Meanwhile, her sister was still sitting on her potty, so I couldn’t dump Sarah’s. And Sarah decided to put her foot into her potty, sock and all. Ugh! That was just one more thing for Mommy to clean up.

When Sarah is in the bathroom with us, Rebekah will pick out her sticker(s), hand them to me and I’ll start to take the backing off and then hand them back to Rebekah to finish getting the backing off. Then she’ll give the sticker to Sarah to put on the paper while she puts the backing in the trash. Sarah wants to be so much involved and Rebekah wants to let her. It is neat to see their bond.

Last night, Rebekah threw up after one of her bolus feeds. I think it was just too soon and her tummy was over full and then she got mad and that was it. We’ll keep an eye on things, but I expect it was a one time thing (and not a new normal). She had been pretty insistent that she wanted tummy drinks, so I agreed, even though I thought it was a little too soon. Guess I’ll have to learn from that one.

The girls have been waking up earlier and earlier. This morning it was before 5:30 when Sarah started making noise. I was able to put her back to sleep for a while, but between her and her sister, I never fell back to sleep. Finally, about 6:15 we all got up. I’ve been lucky (with them sleeping late) for so long, maybe my luck is running out.

6 Shared:

At Tuesday, May 09, 2006 9:49:00 AM, Blogger Carol Warlick Left a thought...

As I read through your update I laugh and smile. Although it is hectic it sounds so normal. The potty training phase is a learning experience for everyone, and usually provides some good memories and laughter. I am so happy to hear that Rebekah is doing so well. The horse riding therapy sounds wonderful! The pictures of the girls are just precious, they are growing up so fast. Frances I pray that God provides you with patience and strength every day. I can only imagine how tired you must be. You are a wonderful, loving mother and you can see that in Rebekah and Sarah. I send prayers and love to each of you.

 
At Wednesday, May 10, 2006 8:37:00 AM, Anonymous Teresa Left a thought...

Got caught up with your last few blogs. Glad to see the sweet pictures of the girls. How is the hair coming along for Rebekah? Glad Scott is getting business for his practice and hope he can make time for mommy and the girls. I pray God continues to pour out more miracles and blessings on you all!

 
At Wednesday, May 10, 2006 8:04:00 PM, Blogger My Kid's Mom Left a thought...

I'm wondering if the girls are waking up earlier because it's lighter outside earlier. That's the only drawback of summer!!!

I am glad to read the every day happenings at your place. Your girls are so precious!

 
At Friday, May 12, 2006 3:33:00 AM, Blogger Danny Sims Left a thought...

The only mistake you made is not staying for the potluck!!

 
At Friday, May 12, 2006 7:21:00 PM, Blogger jel Left a thought...

just popping to wishing you a happy Mommy's Day!

hope you have a great one!


huggs!

and God bless

 
At Saturday, May 13, 2006 8:53:00 PM, Blogger Deb Left a thought...

Tomorrow being Mother's Day, I have been reflecting on all the fabulous Moms in this world. Frances, even though we've only met briefly --and that being years ago --I feel like I know you from following this blog over the past year. Your strength, patience and love toward your girls is a perfect example of what being a Mom is all about. You reign supreme on the 'Best Moms' list! I have admired you over this past year as I've seen how you've demonstrated your love for Rebekah and Sarah. May you have THE BEST DAY EVER as you celebrate being a Mom! Happy Mother's Day!
...still praying daily for you all!
Deb

 

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