We are Still Here

We just haven't posted in a few days - well almost a week. I (Mommy) just haven't had much energy to do anything. I've been in a bit of a funk. So, sorry that I haven't posted.

Sarah's leg seems to be just fine. We had one more little "I'm not happy walking on it" episode which lasted until I picked her up and that has been it.

Rebekah has been doing well with her bolus feeds during the day. There have been several days that she hasn't needed anything for most of the night (at least after I go to bed). And she is handling it without any dilution, so that is great!

Rebekah has been complaining of owies in her mouth, which is usually where she points whenever she hurts, but in the last week or so I actually think she has owies in her mouth. Not quite sure what the deal is, but she tells me the owies are on her tongue and if I give her some magic mouthwash (on a toothette - which is a pink sponge on the end of a stick) and ask her to put it on the owies she puts it on her tongue. I couldn't see anything wrong with her tongue and finally took her to her pediatrician today to look at it. He doesn't see anything wrong either and her throat looks good. So we keep doing what we're doing.

Rebekah also has had some blood in her snot and she's been sneezing a lot more than usual. So, I asked the pediatrician about that, too. With the drying that she probably experiences thanks to the radiation, we could expect some blood to show up. We can use a little vaseline or neosporin to try to keep it moist and see if that helps. I bet that goes over well! Again, no obvious signs of trouble.

Mommy, Daddy and Rebekah all seem to be fighting some allergies. And Sarah seems to have come down with a bit of a cold - runny nose. Oh what fun!

Potty training continues... She has just about used up the stickers that I bought - I guess I'll need to get more (although I know I have more stashed around here somewhere). She has been playing the "I'm done, no I'm not, yes I am" game with me which isn't any fun. The other day, it landed her butt in the water. She had pushed the stool away from in front of the toilet and got herself down (which she doesn't have any trouble doing) and then decided she wasn't done so she tried to get herself back up (I'm telling her not to, but she's got ahold of my hands and won't let go). So in pushing her way back up, she pushes her potty off and it goes flying, but she doesn't realize it and pushes herself up on and fell right in. Boy was that a shocked look on her face! Mommy got her right out and cleaned up. She hasn't been so adimant about not having the stool.

This week is a busy week. Today was the trip to the pediatrician (which meant we had to cancel speech therapy) and school. Tomorrow, she will see the nurse practitioner at the surgeon's office to have a look at her g-tube site (it still seems to be bothering her and there is a bit of blood periodically) and then she sees a Developmental/Rehabilitation specialist. Wednesday is school, Thursday is occupational therapy and Friday we should have a playdate with cousins Jacob and Michael and also go out to a barn where we may sign Rebekah up for some Horse Riding Therapy.

Sarah just loves to take Rebekah to school and play with the sensory table. She was a great trooper through all of our errands today while Rebekah was in class.