Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Wednesday, April 19, 2006



Life continues...

It has been a while since we posted, so I'll try to recap a bit.

Monday, Rebekah had speech therapy and then school. While she was at school, Mommy and Sarah stopped at the post office to mail our taxes. This was the first year that we've had to file an extension (along with estimated payments), but it was late by the time we got any information to our tax accountant. Mommy has been a bit busy over the last year and keeping the computer up to date wasn't a high priority. Ugh!

Tuesday was an at home day for the girls. Daddy was out working.

Today, Rebekah had school and while she was in class, Mommy and Sarah went shopping.

Tomorrow, Rebekah has occupational therapy. Friday, Aunt Tiffany and Cousin Jacob and Cousin Michael are coming to play. That should be fun!

Rebekah has had a variety of "minor" issues that we've made calls to different doctors to figure out what we need to do, if anything. We called the pediatric surgeon's office because she has had a little bit of blood in the discharge around her g-tube. It hasn't been much, but it had been a few days and continued. With no signs of infection or fever, it isn't a big concern.

Then there was the call to the eye doctor because she has had some discharge in and around her left eye. He thinks that it is a dry eye issue and that we need to use lubricating drops - 4 times a day plus lubricating gel at night. That is a load of fun since Rebekah just "loves" (NOT) getting eye drops. If it gets better, great. If not (or if it gets worse) we need to call them back and probably schedule an appointment.

And there was the call to the home health company because the feeding pump wasn't working properly and needed replaced.

After we got home from school, I put both girls down for a nap. Rebekah slept for a long while and when she woke up, she was pretty upset. She was sneezing quite a bit and had some blood in the discharge. She was also coughing, so it makes me think that she may have had some blood in the back of her throat, too. It wasn't huge amounts, so we aren't overly concerned. We'll keep an eye on it.

We continue to work on potty training Rebekah. She is sometimes cooperative and other times she wants nothing to do with it. We'll get there, little by little. Sarah will sometimes want to sit on her potty, too. Most of the time, however, Sarah is content with sitting on the potty fully clothed.

Tuesday and Wednesday, we had the neighbor's dogs in our front yard during the day. To make a long story short, the dogs were getting out of their own yard (through the blackberries) and needed a fence on that side of the yard, so the neighbor asked if we could keep the dogs for a couple of days while he was at work until he could get his fence fixed. At any rate, Rebekah and Sarah really enjoyed having the dogs in the yard. They could watch the dogs, from the playroom or the living room. Any time they heard them bark, they would either bark or say "dog". Rebekah seemed pretty upset when the dogs weren't in the yard.

Please continue to pray for Oliver (who is home now), Gage (who is having post chemo scans this week), Madeleine (who is having some scans this week to determine where they go from here), Josh (who is doing better but needs prayer for healing) and Kennedy (who is undergoing radiation).

8 Shared:

At Friday, April 21, 2006 4:01:00 AM, Blogger Danny Sims Left a thought...

Tell Rebekah I'm right there with her on the eye drops.

There's a spray out that is like a mist. It's a nice alternative, but a bit pricey.

 
At Friday, April 21, 2006 5:30:00 AM, Blogger jel Left a thought...

Hi everyone ,

gave the girls a hug,

 
At Friday, April 21, 2006 9:44:00 AM, Anonymous Anonymous Left a thought...

The Lord's blessing your home with two little angels... don't forget that.

You're in my daily prayers

Just saying hi, from Sonora, México

 
At Friday, April 21, 2006 8:34:00 PM, Blogger My Kid's Mom Left a thought...

Glad to hear from you. This is the first year in a long time where I actually got my taxes done early!!!! Have a really nice weekend.

 
At Friday, April 21, 2006 10:46:00 PM, Blogger Jayleigh Left a thought...

God bless you all!

 
At Saturday, April 22, 2006 6:14:00 AM, Blogger JodiTucker Left a thought...

Hope the cousins had a delightful time playing on Friday!!.....Pictures available from their playtime?? Hope so!
love and prayers to you all, jodi

 
At Saturday, April 22, 2006 7:59:00 AM, Anonymous Teresa M. Left a thought...

I pray that He will continue to reveal Himself to you in new and powerful ways. You are precious to Him and He will complete the good works He has begun in you!Blessings and more blessings,more grace,more mercy, more peace for you all.

 
At Sunday, April 23, 2006 3:47:00 AM, Blogger Jojo Left a thought...

Wow, you have come a long way since I visited here last. Glad things have settled down and are going better. I'm so glad for you all. Will try to check in more often.

 

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