Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Tuesday, April 25, 2006



A Good Day

In general, it has been a good day. Sarah has not seemed to have any ongoing problems with her leg, so that is good. We'll hope that continues.

Rebekah has done a good job of using the potty. She has been very cooperative and had more stools in the potty than in the diaper today! Hooray!

Rebekah asked several times for tummy drinks and we were able to get 3 cans in during the day. One full can at a time without any dilution and no vomiting. Once, she told me she had an upset tummy, so we got the yellow bin out just in case but didn't need it. That means that we only needed to get two more cans in overnight and we have time to do that before Mommy goes to bed. So she gets to be unhooked for most of the night. Woohoo!

Rebekah did a good job of eating, too. Several times she asked for something to eat and did eat some bites. It is always encouraging to see.

Mommy spent much of the day on the phone with doctor's offices, billing offices, and the insurance company. It never ends!

One year ago, today, we were in the hospital. At about this hour, Rebekah's nurse and another nurse came into the room dressed in blue "chemo" gowns with masks and chemo gloves to start Rebekah's first round of chemo. They explained to us, that the chemo was dangerous and they needed to protect themselves against it. They also explained that the chemo drugs will be expelled in her urine, so any diaper changes had to be done with special gloves and that any linens that were soiled with chemo pee would be bagged separate from other linens and incinerated. I think it was then that we realized the harm that we were going to allow our daughter to be put through. It was a rather scary realization, but we had no choice.

What a difference a year has made.

11 Shared:

At Wednesday, April 26, 2006 4:21:00 AM, Blogger jel Left a thought...

I thank God for good days
and the bad ones too! :)


glad to here you had a good day!

here to more good day,!!!!!!!!

huggs

 
At Wednesday, April 26, 2006 12:23:00 PM, Anonymous Anonymous Left a thought...

I was one of the medical students who cared for Rebekah during her time at Emanuel in August and September. As I check this site for the first time in 7 months, what wonderful news to learn of Rebekah's recovery and your family's slow return to normalcy. I have thought of Rebekah and your family often, and will continue to do so. God bless - Kevin Fischer

 
At Wednesday, April 26, 2006 1:29:00 PM, Anonymous char Left a thought...

Cancer is truly a situation where the cure is more toxic than the disease.

Still praying in NC...

 
At Wednesday, April 26, 2006 2:16:00 PM, Blogger the depressed nurse Left a thought...

I just found your site, and have been profoundly moved by your beautiful and brave daughter. I'm a mother of 3 children, one who is also 3 years old, your daughter's story is gut wrenching, and I cannot imagine what you have been through. God bless you all and I will pray for continued healing and blessings. Much love and prayers from Alabama.

 
At Wednesday, April 26, 2006 7:05:00 PM, Blogger Lora Left a thought...

I am so glad that Sarah's leg is alright and that Rebekah is using the potty so well. It is good to hear that Rebekah did such a good job of eating and held down her "tummy drinks" so well. So happy that last year is far behind you, all in the past.

~HUGS~

 
At Wednesday, April 26, 2006 7:52:00 PM, Blogger My Kid's Mom Left a thought...

Yes, I can well imagine the awful realization of what chemotherapy does to a body - but what other choice did we have?! I know when you look at Rebekah, and I look at my Sara, we are just grateful that our kids are doing so much better this year than what they were doing last year at this time. We just do the best we can. . . and say our prayers. . . and the rest is in His hands.

 
At Wednesday, April 26, 2006 8:29:00 PM, Blogger Darlene Left a thought...

With my third son, I was anxious for him to grow up because he was so sick. It seems that growing up has gone hand in hand with growing strong. I hope that for your children too. It will be nice to look back on each year and see that it's so much better than the last. Praise God for healing and wonderful adorable girls.

 
At Thursday, April 27, 2006 7:31:00 AM, Blogger JodiTucker Left a thought...

So encouraged to read this post and know Rebekah and Sarah are growing in so many ways! Still praying for you all as each day is a new one with its own set of happenings!....love, Jodi

 
At Friday, April 28, 2006 4:36:00 AM, Blogger Danny Sims Left a thought...

Yes, hooray!!

 
At Friday, April 28, 2006 7:54:00 AM, Blogger Shelley Left a thought...

It is always wonderful to read of Rebekah's progress! Yay Rebekah!

 
At Monday, May 01, 2006 12:21:00 PM, Blogger Lora Left a thought...

I hope that all is well with the family since we haven't heard from you in several days. It is unusual for you to not post for so long. Please let us know that you are okay because I am very concerned.

Lots of love & Hugs

 

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