Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Saturday, October 24, 2009



Filling In From Yesterday

Thank you for those of you offering your prayers and support. Yesterday was an adventurous day - and around here that can have some different meaning!

We started the day going to the second als clinic in town to try and compare it to the other one, trying to see which was a better fit for us. Both clinics are very very well known and competent so we thought it prudent to make sure we were making the right choice for mommy. Basically it was a chance for us to interview them and get an idea of what they had to offer.

While talking about mommy's limitations, pains, etc. the doctor that we were interviewing said that she didn't think mommy's current pain was the type of pain most als patients experience and in fact she had some concerns. She immediately sent us over to get an ultra sound.

The ultra sound tech finished her leg (and in fact did her other leg too after his findings on the first.) He asked her not to move and told daddy "when that phones right there on the counter rings it will be the doctor wanting to talk to you" and went off to call the doc. The doctor told us that mommy had some pretty serious blood clots in her leg that were in danger of dislodging and causing an embolism. We needed to go directly to the Emergency Room.

In what can only be counted as a small miracle given the over flowing of the emergency rooms in this area with the swine flue, this major metropolitan emergency room was empty and we were seen immediately. Mommy was given in injection of Lovenox which is a pretty powerful blood thinner and we were sent home with 14 more shots to give mommy over the next 7 days. She was also started on oral coumadin (warfarin) which is another thinner. Apparently she will need to be the coumadin for a long time - possibly for life.

While the ER doc was talking to us about Frances he shared about a friend of his that has recently been diagnosed with a disease similar to what mommy has and the doc was pretty distraught about it. We talked with him quite a bit and shared stories as well as some information. The doc had been doing quite a bit of "grasping for straws" research and we talked about some studies going on in Italy. Interestingly enough mommy was familiar with this study not because of her issues but rather because of Rebekah's as the same study is thinking they might have some information relating to Ewing's Sarcoma as well as these neurological diseases. Over all we got some good information but I hope also shared some peace with the doc.

As we write this about mommy's issues we are reminding that we have diverged quite a bit from this blog being totally about kiddos and if that bothers you we are sorry but it is about our lives that some of you find interesting and we enjoy using to share God's love and strength.

6 Shared:

At Saturday, October 24, 2009 10:30:00 AM, Anonymous Anonymous Left a thought...

Please continue to update us on the whole family. Frances is just as important to those of us who are praying as is Rebekah, Sarah and Scott. I have been praying for all of you for the last couple of years and will continue to pray. Our God is amazing even in times like this. I am also thanking God for this doctor who found the blood clots. That is a miracle in itself. Please also post any needs you may have that we can help provide. Tricia

 
At Saturday, October 24, 2009 10:57:00 PM, Anonymous Leanne in Pa. Left a thought...

Just to let you know that I am still praying. By His strips you are healed. God be with you all.

 
At Monday, October 26, 2009 2:50:00 PM, Blogger Deb Left a thought...

I look forward to reading each update. It helps me to pray more effectively for you!

Praise God that the blood clots were detected before any of them dislodged! ....praying that the Lovenox does what it is supposed to do!

A side note...I know that "lovenox" is pronouced "Low-ven-ox", however, I like to think of it as "Love Knocks!" - as in God's love knocks every clot into submission!!

...praying continually for you!

 
At Monday, October 26, 2009 8:21:00 PM, Blogger Dean Left a thought...

Scott and Frances,
I believe God puts people together who have been through and are going through very difficult situations. I have been blessed and encouraged by your attitudes and your faith.I hope our families can meet on November 8th. You are in our prayers daily and will be in our hearts forever. Dean,Cheryl,Carly & Courtney Hibbs

 
At Monday, November 09, 2009 11:55:00 AM, Blogger Deb Left a thought...

Hello Scott and Frances, I'm just stopping by to ask that you pray for Ryan. He is the 16-year old son of Olivia's school bus driver, Julie. I just learned this morning that Ryan has been diagnosed with Ewing's Sarcoma. It's in his head - in his sinuses. Currently he's receiving treatment/chemo at Children's Hospital in Pittsburgh.

I know that despite all that you are facing right now, you understand more than most what this young man faces - and the burden that his Mom, Julie is carrying now. I have directed her to Rebekah's Page. I pray that your faith will once again speak volumes of the goodness and faithfulness of our God.

Please know that I continue to pray for Frances and all of you each day. May God fill you today with His unexplicable joy! Love and hugs, Deb

 
At Monday, November 09, 2009 1:49:00 PM, Blogger Rebekah Christine Left a thought...

Thank you for the comment deb. Prayers uplifted and please let her know we are very open to communication with her or him. Hopefully we can update soon but things are not so great right now.

Scott - Rebekah's Daddy at the hospital w mommy.

 

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