Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.

Friday, October 23, 2009

Quick Update

Just a short little update to let you know where things are.

Yesterday morning mommy was up about 20 minutes when she called to daddy in his office and asked him to go get her wheel chair out of the car. So far we have not had to use the wheelchair in the house but only when we were out and about. She has been using her cane and furniture pretty extensively in the house until now. But the pain of being up on her leg has just become too much. We knew it was coming and had planned on moving things around in the house to make room for a wheelchair this weekend, but instead we spent much of yesterday morning working on that.

Today Grandma C is taking Sarah to school and taking care of Rebekah while mommy and daddy head off to a new als center. It is kind of a second opinion, not of the disease but rather to see if the care center we have started with really is the right one for us.

Then this afternoon we are going to the home of a wonderful friend whom we have not yet met that is donating a wheel chair, scooter and electric hospital bed to us. There are no words in the world the express how meaningful that is.

Tomorrow is a work day with a lot of house organizing and work outside including the building of a handicapped ramp for the front door so that mommy can actually get the wheelchair into the house without daddy having it pick it up the steps.

There are a lot of steps needing to be taken much more quickly than we wanted. Continued prayers and support as we work through that is greatly appreciated.

1 Shared:

At Friday, October 23, 2009 7:24:00 AM, Anonymous Anonymous Left a thought...

I can't imagine how difficult this must be for you. You are in my prayers.



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