Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, April 14, 2008



Rebekah's Eye and Sarah's Hair

Time just flies by...

After two weeks of wearing a metal shield over her eye to protect it after surgery, she is now able to be without it. She has been doing a good job of not rubbing it. We got her glasses back while she was still wearing the shield. They have a little correction for the good eye and nothing right now for the bad eye. We have a follow up appointment this Friday and hopefully we'll be able to get a good eye exam and find out what kind of correction she needs and then have to get a new lense for the glasses. It took 2-3 weeks the first time and we hope it won't take so long the second time.

Meanwhile, we are trying to patch the good eye for about an hour a day to exercise the bad eye. She is not a fan of the patching. It is a struggle to get her to keep it on. The patches we have are like big bandaids with sticky all around and a pad over the eye area. She can easily get her fingers underneath it and pull it off. Each day, it has taken at least two patches because she has either been so upset crying that the patch won't stick any more, or she just rips it off and crinkles it up so I can't put it back on. Usually after a little fuss and fight, I can get her to keep in on for a reasonable time. I haven't put the braces back on, but if I have to I will. And trying to keep the glasses on while having the patch on is difficult, too. But, at least we are having some success. We are supposed to start at about an hour a day and work up to two hours, so we're not doing too bad.

Generally speaking, Rebekah is doing a good job of wearing her glasses. She will take them off at times and I have to tell her she needs to wear them. Some times she will put them back on herself and other times I have to help her. But she is wearing them most of the time. It is hard to push the issue when the really aren't helping much to improve her eye sight. After we get the prescription changed, they should really help her. And they do help to protect the eye, which for Mom and Dad is an important reason to do it.



Sarah has been objecting (and that is an understatement) to having her hair brushed. It is a fight to get it done. So last week, she got a hair cut. Her first full hair cut (and not just the bangs). She was not real happy about going, but she handled it ok. We had it cut to shoulder length and now the curls are gone. It is sad to see them go, but she is a much happier camper now about brushing her hair. It is not without problems, but it doesn't take nearly as long now as it did before.



She came home saying her hair was like her sister's. Since then she's decided that her hair is like Dora's. In any event, she is happy with the haircut and that is what is important. For mom and dad, it is a little bittersweet. Rebekah's curls were taken from her by her cancer. And we had to take Sarah's curls away from her.

I think both girls are looking older...

Rebekah seems to have decided that the BooBoo house is all better. Now she is calling it the "BooBoo Better" house. She has not forgotten that she helped make it better by giving it medicine. The house is starting to come together and we can actually start visualizing being back in it.

4 Shared:

At Monday, April 14, 2008 8:43:00 PM, Anonymous Darlene Left a thought...

"So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand." Isaiah 41:10 Oh, the peace to know we are in His hands...

 
At Monday, April 14, 2008 10:18:00 PM, OpenID eva-marie Left a thought...

What a darling picture! I love the hair cut.

 
At Tuesday, April 15, 2008 2:35:00 AM, Blogger Deb Left a thought...

Sarah is a doll - cute haircut!

--praying for the eye patch situation!

 
At Wednesday, April 16, 2008 8:05:00 AM, OpenID jayleigh Left a thought...

Bless you all as you are waiting. We always wait for something, don't we? Glasses, surgery, to get healthy, for a raise, for the pain to stop, to get through school... on and on.

Your family are so faithful and so patient and so ... just building up to the rest of us who don't have half the issues to deal with as you do.

I haven't been around too much lately because hubby and I are working to become licensed Foster Parents. Getting the paperwork done and getting our home ready is quite a challenge. But you all are never far from our thoughts and prayers.

God bless you all.

 

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