Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, March 24, 2008



In Surgery Again

Rebekah is currently under anesthetic having her lens, cataract and what else? removed in her left eye from the radiation damage. This is a "new" hospital for us as we have only been here one time before and that was not a fun experience. This time was not perfect but much better. It is clear that this hospital is less "family friendly" and more set up like a typical surgery unit than we are used to. But we have some really good docs today and they were willing to do things out of the norm.

Update 3:55pm. We are home. And it has been very difficult. Kind of as a continuation of the above: The doc came out and talked to us about the surgery. What was done was not what he told us he was going to do but there were physical reasons for his choices and we can live with that. He told us the nurses would be out to get us very soon as it would be best if we were there with Rebekah when she woke up. 45 minutes later the nurses came out to get us - telling us Rebekah was "asking" for us. "Asking" was a complete understatement. We could hear her screaming from hundreds of feet and many rooms away. So much for being there with her when she woke up.

In large part because of the above, and also in part because of the big eye patch taped on her face, Rebekah has been severely traumatized. For 2 hours now she has been screaming at the top of her lungs, flailing and pinching/biting anyone that tries to hold her. She has to be in our arms constantly or she will rip her eye patch off. This goes on until she is worn out and she goes to sleep for a couple of minutes and then wakes up with it starting all over again. All she can say is "off" and "two eyes."

Mommy had to ride home in the back seat with her and keep a hold of her hands. Any free chance she gets she will go straight for the patch and tape on her face. It looks like mommy will not be leaving the couch for the next x hours... She is in the other room right now telling Rebekah "do not bite mommy, honey..." Obviously things are a bit hectic.

We were going to try and pick up the van (the windshield cracked on it last Friday) on the way home from the hospital but that couldn't happen as daddy had to stay driving and mommy had to hold Rebekah. Now the dealership is giving us grief over some of the repairs. Ugh.

Prayers and patience would be great about now.

6 Shared:

At Monday, March 24, 2008 3:57:00 PM, Anonymous Anonymous Left a thought...

Keeping you all in prayers!

Love,
Sarah Mathia

 
At Monday, March 24, 2008 6:42:00 PM, Blogger My Kid's Mom Left a thought...

Oh dear, my heart goes out to you. I'll keep you in my prayers.

Is there any way you can give her a Benadryl to help her fall asleep? I don't know what kinds of meds she is on, so that might not be appropriate advice. If that doesn't work, call the pharmacist or doctor to see what you can use to help her through this anxiety!

 
At Monday, March 24, 2008 8:12:00 PM, Anonymous Darlene Left a thought...

I'm so sorry...I am praying for you! Your labor in the LORD is not in vain. Matt. 11:28 "Come to me, all you who are weary and burdened, and I will give you rest. " I am praying that Rebekah will rest and heal, so that you all may rest! Love, Darlene

 
At Monday, March 24, 2008 10:11:00 PM, Anonymous Anonymous Left a thought...

My heart goes out to you guys. I will pray for peace to settle over Rebekah so that she can get some much needed rest. Hopefully time will help her and you. We are thinking of you all.

Love,
Tara Shannon

 
At Tuesday, March 25, 2008 12:56:00 PM, Blogger Aggiema (Michelle) Left a thought...

my daughter had eye surgeries when she was two and then again when she was three and she had a hard time coming out of the anesthesias and leaving the patch on too. It will get better, hope it already has! Praying for you all!

 
At Tuesday, March 25, 2008 9:55:00 PM, OpenID eva-marie Left a thought...

So sorry!

 

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