Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Tuesday, October 30, 2007



Things Are Not Getting Better

Now mommy, daddy, Rebekah and Sarah are all not feeling well. Cold medicine is definately our friend right now.

Today mommy went to say "goodbye" to her aunt. After immediate family said "goodbye" she was taken off the ventilator and passed away from Amyotrophic lateral sclerosis (ALS), often referred to as "Lou Gehrig's disease." She has been ill for several years. This has been particularly difficult as mommy's father also died of the same disease back in 1999. Other relatives including mommy's grandfather and great grandfather. There is a strain of ALS that is called familial ALS that appears to have genetic links and this obviously worries us.

Not exactly what we needed right now - as if anytime would be okay or as if anyone ever "needs" this. But it is really rough on mommy and we could use your thoughts and prayers.

7 Shared:

At Wednesday, October 31, 2007 2:11:00 PM, Anonymous Shelly from Michigan Left a thought...

Hello! My name is Shelly. I'm from Michigan. I happened upon your blog. And I finally finished reading it from start to this post. With several breaks for tissues and prayers. I'm amazed at the powers of God. And of the strength of your family. I will continue with my prayers and to check in with you from time to time. I will be sending happy healthy thoughts your way. I hope you are all feeling well soon.
Thanks for sharing your story and allowing us to pray for you and many others. God Bless.
xoxo
Shelly
P.S. I was wondering if I could copy a photo from you site to use as my wallpaper on my computer. The one where the girls are dancing with Dora... What joy!!
take care!!
ttfn

 
At Wednesday, October 31, 2007 4:31:00 PM, Blogger Rebekah Christine Left a thought...

Thank you Shelly for your kind thoughts and words. Yes, you are free to use any of the pictures here for any noncommercial use that provides you, or anyone else, an opportunity to think about our kiddos, how wonderful they are, and keep them in prayers.

-Scott (Rebekah's Daddy)

 
At Wednesday, October 31, 2007 10:44:00 PM, Anonymous Melenie Duval Left a thought...

I am so sorry to hear that all of you are sick with a bug! Yuck! We just had a bout of it ourselves and Kennedy seemed to get the worst of it...now if we could just get control of the allergies...hmmm. We will pray for all of you and especially Mommy. A death of someone you love especially under the circumstances is difficult to deal with. We will continue to pray for peace and protection.

We think of you guys every single day and pray for you as well. You do such a wonderful job keeping the website updated (much better than I am about ours :) and we love checking in on all of you.

Thinking of you often,
Melenie
Kennedy's mommy

 
At Thursday, November 01, 2007 10:52:00 PM, Anonymous Anonymous Left a thought...

Sorry to hear of your aunts passing. It's alway such a sad time for the ones who loved them even when we know that they are no longer suffering. Know that you are always in my thoughts and prayers and that you will all be well again soon. Leanne from Pa.

 
At Friday, November 02, 2007 12:23:00 PM, Blogger Sarah Left a thought...

Sorry to hear that everyone is still sick. Also, sorry to her of the passing of your wife's aunt. Prayers for you all.

 
At Friday, November 02, 2007 8:01:00 PM, Anonymous Matteson Left a thought...

Hey you guys! Hope you're all on the mend. Thinking of you often. Thank you Scott and Frances for all your words and actions of encouragement over these past months. Yes, thank you.

Love, the Mattesons

 
At Monday, November 05, 2007 4:18:00 PM, Blogger My Kid's Mom Left a thought...

I certainly hope that all of you are feeling better physcially by now. It made the rounds in my family, too. I'm sorry, Frances, for your aunt's passing - may she rest in peace with the risen Lord.

 

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