Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.

Wednesday, February 28, 2007

Results - One Year Post Treatment

We met with the doctor at 3pm today to go over the results of last week's two days worth of testing. After a brief exam, both Sarah and Rebekah went off to play with Mommy Debbie and Kelsey who met us at the hospital to take care of the girls while we talked with the docs.

Not being sure how to present this exactly, I will first start out by saying that there is absolutely NO signs of any cancer recurrence. It is very difficult going through this and I have to admit that this was a wonderful surprise that I was not expecting. Don't know why, maybe its because I was preparing myself for the worst, maybe its because I have been weak in faith or ??? The negativity notwithstanding, this was SPECTACULAR news and we thank you all so much for your prayers and support.

That is not the whole story, however. The side effects are beginning to show themselves. In medical speak:
MRI FACE - There has been an increase in mucoperiosteal thickening of the maxillary sinuses bilaterally and both mastoid air cells are now completely pacified with fluid...Increasing sinusitis and mastoid fluid bilaterally.
MRI BRAIN - There is progressive bilateral maxillary sinus and mastoid air cell disease.

The translation of this - the sinuses and the area surrounding them have been pretty severely and permanently damaged by the radiation and the effects are continuing to get worse.

There was discussion about her hair (or lack of hair) on the left side and lack of eyebrow and eyelashes on the left eye. Basically if it has not grown back in the first year we should expect that it will not. Rebekah is definitely going to be in need of a good hairstylist!

There was also discussion about what may (or may not?) happen to her adult teeth as she starts to loose her baby teeth. There continues to be a good chance that there will be growth problems with her adult teeth as well as her jaw and face as a whole.
The doctor was very delighted to see that the asymmetry he was expecting to see as her face grows is much less than he was expecting. She is having a harder time opening the left side of her mouth than her right, but no surgery is necessary yet.

We do realize that this might, on the surface, seem a bit depressing. But it is NOT! It is exhilarating! Our little girl is alive and it is so delightful to have both her and her sister playing together every day! Again, thank you ALL so much for your prayers and support. We could never have made it this far without you. Please do not forget to continue to lift us up as well as the other kiddos listed to the right who are continuing to face challenges and the families who are continuing to deal with the loss of their children. With the proper perspective our life is just about perfect!

9 Shared:

At Thursday, March 01, 2007 4:49:00 AM, Blogger MAK Left a thought...

Praise God, no sign of cancer! Cancer can and often is life ending, these other things can be challenging but for the most part just things to deal with. Great news, very happy for your family. I know Rebekah will have many challenges in her life but am thankful that the cancer is gone.

At Thursday, March 01, 2007 12:45:00 PM, Anonymous Anonymous Left a thought...

Congratulations on the good news guys!!! Thanks for all the cute pictures of your girls. Next week Will goes in for his last(hopefully) bone marrow test ever. Yeah! Jill Renton

At Thursday, March 01, 2007 2:10:00 PM, Blogger Laina&laura Left a thought...

I LOVE hearing this news!! I've been a silent reader of your blog and have been checking it every few days from the beginning. I was the Speech therapist working at Poynter when she got diagnosed. It seems so much time has passed and so many things have happenend in the world and in my own life. It's wonderful that through all of everything, Rebekah has gotten through the challenges, and your family has also made it through the many storms.
It's wonderful to hear that she is continuing to be free from cancer. I remember how her little face looked when you took in to the doctor that day, swollen and painful. It's good to see her smiling and happy in the pictures.

At Thursday, March 01, 2007 9:57:00 PM, Anonymous Anonymous Left a thought...

What great news. We have seen how God has been at work in Rebekah's life and I don't believe that He is finished with her yet. I am praying that all the problems that you have mentioned will improve and you and the doctors will see them deminish because God is still in control. Continuing to believe. Leanne from Pa.

At Thursday, March 01, 2007 11:37:00 PM, Anonymous Anonymous Left a thought...

So so happy for you guys!!

**big smile on my face**
~kelli whis

At Friday, March 02, 2007 10:07:00 AM, Anonymous Anonymous Left a thought...

God bless this little girl! What fabulous news, I love to read all the good stuff about Rebekah. Seeing the pictures of her with such a huge smile makes my day! Helen.

At Sunday, March 04, 2007 7:29:00 PM, Blogger My Kid's Mom Left a thought...

WooHoo!!! And a glorious Amen!

At Tuesday, March 13, 2007 8:38:00 PM, Anonymous Anonymous Left a thought...

First Congratulations! I was working late and came to a website that had your link. I am very touch by Rebekah's story that I could not just leave without pasting on some of my recent research.

Jesus conquered all sickness and disease, and I truly believe that the Lord knew everything we would face and provided a cure for every sickness and disease. The Lord heals in mysterious ways. Some ways right in our gardens.

God Bless!!

At Saturday, July 21, 2007 7:18:00 AM, Anonymous Rebekah Left a thought...

Hi! Just wanted to drop a line and say that I am so excited about Rebekah's news. I found your blog because I was looking up my own name (also Rebekah, gotta love the spelling ;) ) and here I am responding to what God is doing in the life of your family. His Word says to "Rejoice with those who Rejoice and to mourn with those who mourn" (Romans 12:15) and today I rejoice with you! I hope that even now, almost 5 months after the Feb update, you sense his presence! And praise God for us college nannies! haha, I currently sit for an almost 2 year-old that just had eye surgery, and her little sister, a newborn. I'm sure it's just as much a blessing for Katie to work with your beautiful girls as it is for you!
Much love and Prayers,


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