Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Tuesday, October 24, 2006



Seattle Visit Went Well

Thursday, we had our appointment with the Oncologist in Seattle. We were asked to bring Rebekah's scans with us. We knew that it would be difficult for the doctor to have much of a look at the scans if we were bringing them with us, but they were very clear that we were to bring them and not send them in advance. As we expected, doc didn't have a good chance to review them before meeting with us. He wanted to know what our concerns were and we layed them out - 1) do we need to be concerned about the current scans, and 2) what scans should we be doing on a regular basis.

From the little he had seen in the scans and the reports he read, he wasn't concerned about the scans. He did ask to keep the cds so that he could spend some time reviewing the scans and let us know. We left them with him and not more than a half hour later, he called telling us that he wasn't concerned about what he saw. GOOD NEWS!

As for what scans we should be doing, he generally won't do a PET Scan after treatment because of the false positives and they just aren't proven. He recommended that we stop doing them, because they produce anxiety and aren't that helpful. He likes to do a Chest CT instead of a Chest Xray. He feels that the Chest CT will likely catch a lung met earlier than a Chest Xray would and although a recurrence is difficult to treat it is not impossible to treat and it is better to catch it earlier and begin treatment earlier. While Ewing's will usually recur at the original site or in the lungs, it can recur at any location. Therefore, he will often do a full body bone scan as well to watch for recurrence in any location.

All in all, it was a good meeting and we appreciate his time to review things and provide a second opinion. We are glad we went and feel a bit better. We still have to take things a step at a time, but we aren't too concerned right now.

The Dunham family watched both girls for us for the weekend - Thursday through Sunday. Both girls seemed to have a good time. And the Dunham family seemed to enjoy it as well. Mommy and Daddy got away for the weekend, sort of. We were working a race in the woods that ran all day Saturday. We got to "camp" late Thursday night (after driving to Seattle and back) and worked on setup Friday, the event Saturday and headed home Sunday morning. It was nice to not have to worry about the girls and know that they were having fun and being s-p-o-i-l-e-d. We did miss them, however.

Thank you for your continued prayers and concern. It helps us through each day. Please continue to keep Gage and his family in your prayers.

6 Shared:

At Wednesday, October 25, 2006 7:36:00 AM, Anonymous Anonymous Left a thought...

So glad to hear the good news. God is good and His mercies indure forever. Continueing to pray for complete healing in all areas of Rebekah's life. She is such a beautiful little girl. Love to you all. Leanne in Pa.

 
At Wednesday, October 25, 2006 8:32:00 AM, Anonymous Debbie Left a thought...

I've been watching the blog waiting to hear how Seattle went. SO GLAD to hear that it was a positive visit. Let us know when we can S-P-O-I-L your girls again! Kelsey loved that you spelled that out.

 
At Wednesday, October 25, 2006 12:48:00 PM, Blogger Julie Q Left a thought...

The news is wonderful! :) Always love to see good news.

 
At Wednesday, October 25, 2006 6:16:00 PM, Blogger thequeen Left a thought...

Glad to hear that the trip went well and so did the Dr.s visit. It sounds encouraging so far!!!
Continued prayers coming your way.

 
At Thursday, October 26, 2006 9:18:00 AM, Blogger jel Left a thought...

glad to hear some good news! :)

and to hear that the 2of you got some time together,


still praying for Gage, and his family!

huggs

 
At Thursday, October 26, 2006 7:24:00 PM, Blogger My Kid's Mom Left a thought...

I am relieved to hear of the good news!

 

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