Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.

Friday, October 06, 2006

Odds and Ends

Please pray for Gage and his family. Gage is a boy a little older than Rebekah with the same type of cancer (Ewing's Sarcoma) who is just a little behind us in treatment. He just had 6 month post treatment scans this week and although the scans look good, his bloodwork is concerning. They suspect that he has Leukemia (AML). According to his page, "There is a 5% chance the Oncologist is wrong." Please pray that the tests come back that it is not Leukemia. Once, again, their life has been turned upside down. Please pray for them.

Monday was Rebekah's first ride on the bus to school. If you saw the pictures, you know she loved it. When she came home, her bus driver was telling us how excited everyone was at school to see Rebekah on the bus. Tuesday, Mommy drove Rebekah to school. She was really sure that she wanted to go on the bus and not at all happy when Mommy told her that we would drive. She has speech therapy after school, so it makes sense for me to drive her and then take her to speech. When I dropped her off at school, the teachers were telling me how excited Rebekah was to ride the bus and how she was telling everyone that she rode the bus. She was happy again to ride the bus on Wednesday. Now, whenever we talk about going to school, she just repeats "bus bus bus".

We had our meeting at school today, to finish where we left off last time. It seemed to go well. The "team" is requesting that Rebekah be evaluated for an augmentative communication device. They've been using a simple device in the classroom and Rebekah has been doing well with it (and even using her verbal words more), so it makes sense to see what might be the "right" thing for her. Hopefully, within a month or so she will have had the evaluation done and we'll know more about our options. Thanks to our friend Pat, who watched the girls play in the classroom while Mommy and Daddy met with the "team".

We have things in the works to go up to Seattle for a second look at Rebekah's scans and treatment - they are working on insurance approval and scheduling. It should happen before the end of the month.

We've been working on Potty training. Neither of the girls is doing a good job of telling Mommy when they need to go. They will, however, tell Mommy they want to sit on the potty when it is time to go to bed or any time they think a delay would be to their benefit. Almost every time the girls sit on the potty, Rebekah will go. Now, I just need her to tell me when it is time. Sarah, will rarely go on the potty. She will constantly get up and wander around the room, but if I tell her she needs a diaper on if she's walking around she gets upset and tells me she needs to go potty. How long do I let them sit? Especially when Rebekah has already done her business and Sarah keeps getting up and wandering. It is a good way to frustrate Mommy. When they object to being done, I have been telling them that they have 1 more minute and then we need to be all done. That doesn't seem to help. Ugh!

Enjoy the weekend!

3 Shared:

At Saturday, October 07, 2006 6:39:00 AM, Anonymous Diana Left a thought...

What I found worked on potty training was to confine my girls to an area that was easily cleaned up (tile) and allow them to go about without panties. They had a few accidents but didn't like the feeling and figured out that they liked using the potty seat.

At Saturday, October 07, 2006 7:36:00 PM, Anonymous Jayleigh Left a thought...

Prayers for you especially during this trying potty training time.

Just imagine the freedom you'll have when there are no mor diapers. Ooohh yeahhh!!!

At Tuesday, October 10, 2006 12:18:00 PM, Blogger Eva Left a thought...

But isn't perspective a wonderful thing? I'm thrilled to hear you making decisions about communication tools for Rebekah and frustrated over potty training instead dealing with facial/mounth burns from radiation and throwing up from chemo.


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