Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Wednesday, July 13, 2005



Good Day, Not Feeling Great

It has been a good day. Grandma M came out last evening (and brought dinner), spent the night in her motorhome (in our driveway), hung out all day today and is camping in our driveway again tonight. Rebekah woke up and kept calling for Grandma. Finally, we let her walk out to Grandma's motorhome to get her attention. She walked out to the door and stood there saying "Knock Knock Knock". Daddy explained to her that she had to knock on the door with her hand, which she finally did. Grandma let her in and she hung out with Grandma for a little while (and got some more breakfast).

Rebekah has not seemed to feel great. She's been clumsy and gotten upset pretty easily today. She threw several temper tantrums and was throwing items at people. She spent quite a bit of time in timeout. Her attitude needs a little adjusting. Over the last few weeks, she has been getting quite upset over little stumbles. Mom's not quite sure why, but Mom tries to reassure Rebekah and help her to keep safe.

With Grandma M here, it gave Mom the opportunity to get out and run some errands.

Last week we found out about a family near our old church whose house had burned down and they had lost everything. They are going to be living in a trailer while they wait for their new home, but they are in need of everything. Mom had been planning on going through cupboards and getting rid of some things that weren't getting used (extra towels, dishes, etc...). She cleaned out some of the cupboards and took some of the items out to the church for the family. It reminds us of how blessed we are. In many ways, we have so much and, although it wasn't much, we were able to help this family out it a small way. God is Good and he cares for all of his children. We have been blessed by so many people and it feels good to help another family.

Yesterday morning we received a phone call from Steve who attends Our Place Church. He cleans windows for a living and had heard from Keith that we had some windows that needed cleaned. He would come out early evening to take a look and see if he could help. Mom had been worrying about the mold that had developed on the windows and between the two sets of windows and had told Keith about it. Mold can be really bad for immune compromised individuals, so it has weighed heavy on Mom. In particular, there were three sets of windows that needed cleaned (the others had already been cleaned). Steve came out and had time to clean them. It took him a couple of hours, and they look great. I know it would have taken me much longer (if I ever had time to get to that. A BIG thank you to Steve. It was awesome that he called and was able to get right to it. He told us that he has enough business right now that he generally turns down anyone with storm windows like ours, so it was especially nice that he was willing to help us out this way.

Mom had been stressed that there was too much clutter in the way of even getting to the windows. Luckily (can we say God), Mom was able to get much of the clutter cleaned up on Monday while Grandma A was helping watch both girls. This was without knowing that Steve would call.

With Rebekah's counts up, we are hoping to do some fun camping this weekend. One of the campouts we try to make each year is this weekend and there will be lots of kids around for Rebekah to play with. We are looking forward to it and hope that we can make it happen.

The Radiation Oncologist called today and left a message indicating that the doctors are still looking at Rebekah's tumor and that Radiation probably won't begin until a week from Monday. We knew that was a possibility. It won't change our hospital stay next week.

Carol came out for a while this evening to help Dad in his office. She was a GREAT help. Thanks Carol.

We feel very blessed to have many friends and family who care about us, help us in many ways and pray for us regularly. Thank you so much for your support. It is truly appreciated.

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