Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Sunday, July 10, 2005



Doing Pretty Good

Here it is the end of the weekend. All in all, it has been a pretty good weekend. Rebekah has continued to be generally energetic and playful and have a decent appetite. She can be very finicky about what she will eat, but then it is hard to tell how much of that is 3 year old normal and how much of it is chemotherapy affecting her appetite. Goldfish, Cinnamon Life cereal, Apple Jacks cereal and hot dogs have been the standards for the last week or so. Go figure!

We are a little concerned about a rash or open sore that she has near her central line dressing. I'm not sure if it is from the last dressing, or if it is completely new. We'll have the doctor look at it on Tuesday when we're in. Please pray that it goes away. Last week, when we were in to see the doctor he warned us that she may need a transfusion this week. Please pray that she doesn't need it. She seems to be acting ok to me, so I'm not convinced that her counts will be so low as to need it. I know it can be hard to tell from looking at her (otherwise we wouldn't need to do the blood counts).

We had a number of visitors this weekend - Grandma M, Grandpa and Grandma C, Steve and Pat. It was good to see them all.

A big thank you to Keith from Our Place Church who was able to find a member that had a freezer that was no longer needed and donated it to us. Even bigger thanks to the donor! There have been a number of people who have wanted to help with meals, but we haven't had the room to store them. With the addition of the freezer, it will make that much easier. And it has come just in time for the very busy 6 weeks of Radiation which will probably start on the 18th (or at least some time that week).

As for Radiation, it looks like we will need to be at the hospital each day somewhere between 6:30am and 6:45am to start the treatment. The only way to guarantee that we will have the anesthesiologist available is to schedule it that early in the morning, before the "normal" day begins. It is hard to tell for sure how long everything will take each day, so we'll have to see how it goes. The good news with the early time, is that we won't have to deal with much traffic. We're trying to figure out how to make everything work well for us.

As if we didn't have enough things to worry about, late last week the check engine light came on in the van. We've got an appointment to have that worked on Monday morning. Hopefully, it is something easy to fix and be covered under warranty. Uugh! We rely so much on the van to get us to and from all of the appointments. Prayers here would be appreciated, too. I know it probably seems trivial, but it is one more thing to worry about.

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