Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Tuesday, June 28, 2005



Tuesday - SCAN Day

Last night was almost tolerable in the trailer. Sarah did not want to sleep or stay in the playpen or lay in mommys or daddys arms or... well, anything except scream and cry. We made it through however.

When we got to Rebekah's room at 7:30 this morning we found out that they have scheduled her CT scan and Bone scan for 3:30 this afternoon. They tried to tell us that she was not allowed to have anything to eat today (even at 7:30am)before the scan. We had some discussion and she got breakfast.

The rule has always been 6 hours before and there was no way in the world this little girl was going to have to go all day without eating just so she might not get sick during anesthesia and make life difficult for the anesthesiologist. Actually there is a bit more to not eating that making life easy, it can be down right dangers to have an upset tummy with food in it while you are under sedation BUT Rebekah has never had a problem with an upset tummy during anesthesia and we were not just going to make her wait all day to eat.

We got word that cousin Karen made it on her plane and should be here late morning - Halleluia!

If this works right I am enclosing a picture we took yesterday as we started chemo. Sorry, the palm camera has no flash and it is blurry but it does give you an idea of the room and what kind of "garb" has to be worn when dealing with the chemo. Thanks to nurse Lisa for posing for us!

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