Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Saturday, June 25, 2005



A day without an update...

...and you all keep coming back to check. We are sorry. Yesterday was a long day as daddy was out of the house most of the day working and mommy was home alone with the girls.

Rebekah is just not being a happy camper. It is really hard to tell how much is not feeling well and how much just being 3. She is throwing temper tantrums trying to get her way (it doesnt work) and just generally not being as nice as mommy and daddy would like her to be. Normally she is this bad in the hospital but not this bad at home - that makes us really nervous about this coming up long stay in the hospital.

We will be going in on Monday morning and expecting to stay 7 days. During that time Rebekah will be getting chemo as well as having some other diagnostic tests done to try and determine how the tumor has been reacting to the chemo. There will at least be a CT scan but we are not sure about anything else. We are cautiously optimistic, not because of any hope the doctors have given us but because of all of the prayer support. Please be thinking about us extra hard this week.

We also want to very much thank those of you who have been to www.helprebekah.com recently and have either donated to Rebekah's trust or helped in other ways the last couple of weeks. The generosity of friends and strangers a like continues to bring tears to our eyes. THANK YOU!

2 Shared:

At Saturday, June 25, 2005 8:31:00 PM, Anonymous Anonymous Left a thought...

Thanks so much for continuing the updates thru this very difficult time for you all. I check every day to see how to pray. Tonight I am praying God to encourage your hearts and give you peaceful rest.

Love in Him,
Jo

 
At Saturday, June 25, 2005 9:25:00 PM, Anonymous Anonymous Left a thought...

Hi Sweet Rebekah,
Aunt TT writing here for Michael and Jacob. We read 2 verses today that we wanted to share with you, your sister, mommy and daddy:

Peace I leave with you; My peace I give to you; not as the world gives, do I give you. Let not your heart be troubled..." John 14:27

I, even I, am He who comforts you." Isaiah 51:12

Scott and Frances, as for Rebekah's behaviors, remember to praise her specifically for what she IS doing well (i.e., Nice job sitting in your chair, Rebekah!) ignore undesirable behaviors and treat consistently any dangerous behaviors (i.e., time-out for hitting).

I love you guys very much!

Sick with bad colds and coughs,
Tiff, Mark, Michael and Jacob

 

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