Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, February 21, 2011



Has It Been 5 Years Already?

It seems like only yesterday we were staying at the hospital for Rebekah's last set of treatments. Many of you were "there" with us. It's now been just over 5 years.

We just started the cycle of appointments that will be the end of her main "follow up" period. She will always be tested annually but the big tests every few months will be done. The next 30 days see us going to the hospital and doctors about 8 times. Today Rebekah and daddy went to get a Chest X-Ray and Panorex of her jaw. Rebekah did OUTSTANDING! She stayed perfectly still for all three of the pictures they had to take including the long Panorex where a machine has to completely encircle her head taking a 360' picture.

We have been to different hospitals recently with mommy's issues but going back to Emanuel is like going home. It is strangely comforting. Every where we turned around nurses and other hospital staff were coming up to us saying "Hi Rebekah" "You have gotten so big" and "You look so good!" Most of them daddy didn't even recognize but they knew Rebekah.

Daddy kept trying to remember how we felt when we were first in the diagnostic imaging department in April of 2005. He couldn't do it very well until he saw the fear deep in some of the eyes of a couple of parents, then it came back with a rush. As if she also remembered Rebekah kept telling other kids there "It okay, it be alright."

When the radiology tech came to get us Rebekah proudly grabbed his hand and led the way through the hospital (her tests had to be conducted in the Emergency Department way away from diagnostics) until we got to the doors that require a code to get in. Rebekah looked at him and said "You do" and he opened the doors. As if the hospital map was burned into her memory Rebekah continued through the maze of the back of the ED to the room where the machines were and marched right in. She pointed to the spot on the machine she has to look while she stands still and asked (ordered?) the tech to put one of his stickers on that spot for her to look at. "Sticker there please" she said. When we were done he offered her another sticker out of the sticker box and she said "No thank you - big box" and pointed to the box up on the counter where the bigger toys were. She does remember the important things!

After following Rebekah back through the maze (and stopping to say hi to a few more staff and other kiddos she came across) we were back to the van and on our way home. Rebekah loudly proclaimed "I DONE NOW." We hope so baby, we certainly hope so.

8 Shared:

At Monday, February 21, 2011 2:42:00 PM, Blogger Hero Left a thought...

I'm hoping so too Rebekah (and Daddy).

 
At Monday, February 21, 2011 2:47:00 PM, Blogger Deb Left a thought...

wow. I barely have words....
I have lots of tears. I am rejoicing in this phase of Rebekah's life and praying for an all clear! Five years! wow.

God is good - in spite of all that we know that seems so wrong in your lives right now. ...I am rejoicing. ....and praying...always and still...
Love you guys!

 
At Monday, February 21, 2011 2:53:00 PM, Anonymous Anonymous Left a thought...

I so rejoice along with you guys and pray for it to stay "over" as we watch you grow stronger all the way!
Love, Teresa and Jeff Mathia

 
At Monday, February 21, 2011 3:05:00 PM, Anonymous rob Left a thought...

I hope so too guys... that brought tears to my eyes, Scott. God Bless you all so much.

 
At Monday, February 21, 2011 4:21:00 PM, Blogger Lora Left a thought...

It is so good to be able to read those words in past tense and that Rebekah is only having a checkup these days. Thank God for the blessings!!!

 
At Monday, February 21, 2011 5:46:00 PM, Blogger Valerie Left a thought...

Oh Scott - music to my ears. I do know what you mean about going back to the hospital and having it feel strangely comforting - I feel that way every time I walk into Children's Hospital (but now it's for educational seminars rather than for Sara's illness). God bless all of you!

 
At Monday, February 21, 2011 10:37:00 PM, OpenID eva-marie Left a thought...

Wow. 5 years already. How is that possible? What a brave little girl you have. It truly is amazing what she remembers. And yes, we all pray it's all done now!

 
At Tuesday, February 22, 2011 12:08:00 PM, Anonymous Leanne from Pa. Left a thought...

So good to know that five years have gone by. Still thinking and praying for you all. I know the report results will be good. He is faithfull.









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