Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Thursday, June 19, 2008



About 8 weeks ago...

... we started down a roller coaster of a journey as Rebekah's last set of scans came out with what appeared to be cancerous spots throughout her lungs. A week later we then went for a different type of scan that didn't show the same "spots." All they could tell us was "we don't know and you need to give it 6-8 weeks and then we will scan again and see what is there."

Well,today we are at that scan again point. The girls are just stirring in their beds and soon we will be off to the hospital for a days worth of testing. Both girls wanted to sleep in their "hospital jammies" (kiddo gowns) so won't they be surprised at the hospital when Rebekah rolls up already in a gown...

These last weeks have been difficult to bear emotionally but there have been a lot (too many) things to keep us busy and our focus elsewhere. Now waiting for the results of these scans will be back to the fore front. We should hopefully know something next week and hopefully NOT before. No news is good news. "Come in now..." is bad news. Keep us all in your prayers please.

9:42 AM Update. Rebekah is now under. She did really good with directing everybody on what they needed to do and fussed a little more than usual over the IV but did "far better than we expected" said the Nurse. We have the delight of having Sue, the very first nurse Rebekah ever had when we were first diagnosed. We credit Sue for the fact that even this morning when we jokingly gave Rebekah the choice to go to the hospital or to Chucky Cheese she wanted to go to the hospital!

We had a bit of a time with with the CT staff. For 80+ anesthetics over the last 3 years Rebekah has gone to sleep in Daddy's arms. This time she said she wanted to do it "on her own like a big girl." So she went into the CT room in the nurses arms and Daddy waited outside the window. The CT tech tried to tell Daddy he couldn't be there. Daddy explained that he would be until Rebekah was under and that normally Daddy would have been IN the CT room. Although the tech didn't seem happy with that answer, Rebekah was out and Daddy was gone before it got any more difficult.

8 Shared:

At Thursday, June 19, 2008 9:27:00 AM, Anonymous Bev Zimel Left a thought...

Keeping you close in my thoughts and prayers with special anxiety-calming mom-and-dad hugs included.
Take care,
bz

 
At Thursday, June 19, 2008 12:12:00 PM, Blogger Di Left a thought...

I'm praying for Rebekah and your family.

 
At Thursday, June 19, 2008 8:53:00 PM, Anonymous Darlene Left a thought...

Lord,
Thank you that You are working all things together for the good of Rebekah and her family who love You and are called according to Your purpose. We trust You to make them strong, even in their weakness, through Your great power. Thank you for loving us.
Because of Jesus, Amen.

 
At Saturday, June 21, 2008 12:25:00 PM, Blogger Donetta Left a thought...

Your all in the prayers and thoughts that flood my heart toward your good behalf.

 
At Monday, June 23, 2008 1:00:00 PM, Blogger Marla Bean Left a thought...

Rebekah and your family have never been far from my prayers.

 
At Monday, June 23, 2008 8:02:00 PM, Anonymous beth Left a thought...

I have only posted comments a few times but know you are continually in my prayers. May God's peace and hedge of protection surround your family.

 
At Tuesday, June 24, 2008 8:20:00 AM, Blogger Debbie Left a thought...

I've been out of town, but you're in my thoughts. Hope the news this week is all good news!!

 
At Thursday, June 26, 2008 3:12:00 PM, Blogger JodiTucker Left a thought...

I cannot even fathom 80 anesthetics for dear Rebekah or for the watchful eyes and hearts of her parents....Please know you continue to be in my thoughts and prayers.

 

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