Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.

Thursday, August 30, 2007

Getting Ready for School

So many things to do, so little time... How many of you can relate to that? I'm sure you can. There are so many details... What will we do with therapies? What will school look like? What will the overall schedule look like? In many ways we just have to wait and see how it works (or maybe more accurately - if it works). I am thankful, however, that I decided to pay the PTA to purchase Rebekah's school supplies so I didn't have to worry about that one.

Right now, the plan is for Rebekah to go to school for 3 full days (Monday, Wednesday and Thursday) with the rest of the Kindergarten class and to go an additional half day on Tuesday (basically 8:30-11:30). On that Tuesday, she will be able to receive therapies, get some repetition or whatever help she needs. I'm not sure how well she'll do with full days, but we'll have to wait and see. I know it will take some time to adjust, so we will try to be patient. We spent about an hour this evening speaking with the special education teacher and that was an encouraging conversation. Rebekah will have an aide with her - one in the morning and another in the afternoon.

Monday and Wednesday afternoons I will pick her up from school and take her to her speech therapy. I'm not sure how she'll do after a long day, but we will see. If it is too much for her, we will have to rethink it and maybe give it up. One day at a time. Twice a month we will have speech therapy with her device and those appointments are scheduled for Fridays, so she should be able to concentrate for it.

We are getting ready for Candlelighter's Family Camp this weekend. (Candlelighter's is a group that supports families with children with cancer.) We are excited about it. Daddy and I have been on the planning committee for it and we are looking forward to it. It is a great time to get together with other cancer families and have fun. We are planning to head out tomorrow for Camp which starts on Saturday.

Both Grandma A and Grandma M are school teachers, so they started back to work this week. Grandma M is doing it in a wheelchair. Thankfully, she has a coworker who lives farther away than she does and is willing to take her to and from school. Her next check up is the middle of September, so she's in the wheelchair until at least then (and maybe even longer).

Sarah had her screening for school and they think she will probably qualify for special education. She has an evaluation scheduled for next week. Hopefully, we'll know what her schedule might look like after that meeting. I wish I knew what the overall schedule would be like for our family, but I just have to be patient.

Katie is back after being gone for two weeks. Having her back this week has allowed Mommy to help Daddy at least a little this week. He's been running ragged without having much help from Mommy.

I am a bit apprehensive about Rebekah starting Kindergarten, but I guess it is part of her growing up. She is still my little girl. She was all excited when we bought her a lunch bag. Believe it or not, she put the Dora one back and wanted the Hello Kitty one. She still seems fine with her choice, so I guess it will be ok.

4 Shared:

At Friday, August 31, 2007 7:50:00 AM, Anonymous Anonymous Left a thought...

Hidy from Tennessee! Starting school is sooo exciting! Having taught Special Education for 20 years and now being the mother to 3 adopted Special needs children, I KNOW first hand where you are at right now! Will it all fall in can we be in 6 places at once? All the questions and it never seems like we have enough answers...BUT remember to cast it ALL on the LORD for He cares for you and yours! That is the way we make it through with our Children. 2 are in school on various schedules and one is on homebound due to his physical limitations. We feel like jugglers some days with Physcial Therapy, Occupational Therapy and Speech Therapy AND 3 diffirent school schedules. But God will help you as He always helps us.
Enjoy these moments of FIRSTS! You have beautiful girls.We check in daily around here and pray for you all every day.
Love and prayers

At Friday, August 31, 2007 9:27:00 AM, Blogger Stephanie Left a thought...

Hi Adams fam!! Look at me, Scott... I am actually posting on your blog!! I haven't been on your site for a while but think about you now and then. I can't believe my sweet 'Becca is starting kindergarden! She looks great and sounds like she is making progress, albiet slowly. I am proud of your continued hard work to give her what she needs to succeed, tiring as it is. Hang in there. Best of luck next week!!

XO Nurse Stephanie

At Friday, August 31, 2007 6:29:00 PM, Blogger Donetta Left a thought...

hello, I hope all the forms and all are falling in place for you. We are working on two MET for the IEP on both our special needs kids. It sure is hard work and trying to remember everything for one is a challenge let alone two. Your doing a great job girl hang in there.

At Thursday, September 06, 2007 6:57:00 AM, Blogger Deb Left a thought...

I've been thinking of you throughout this whole milestone of the beginning of kindergarten and praying that all goes well!

...can't wait the hear the updates.


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