Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
____________________________________

Tuesday, November 14, 2006



Scan Results are In - All Clear - WooHoo

Today was our clinic appointment to go over scans. Everything is looking good! We can live and enjoy life for another 3 months. WooHoo! We talked with the oncologist about a variety of topics.

Rebekah has not been able to have any immunizations since she was diagnosed with cancer and her sister was not able to have any immunizations that were "live". That has meant that neither girl is up to date on her immunizations. We needed to find out what both of them could have. Rebekah can start to have more immunizations as long as they are not "live" - we will need to wait until 1 year past treatment for that. Sarah can have any immunizations at this point.

Our treatment protocol calls for a Neuropsychological evaluation at two years post treatment. Rebekah's developmental specialist suggested that we have it next spring (which would be one year post treatment) so that it would be before she went into kindergarten. So we talked with the oncologist about that. Only to find out that the specialist at Emanuel that both the oncologist and the developmental specialist would recommend is leaving her practice and moving back east before the end of the year and is booked solid for that entire time. So we'll need to find someone else. There is a doctor at OHSU that would be a possibility (we've heard him talk a couple of times) and our developmental specialist may have another idea. So we'll need to work on that.

The oncologist also wanted to make sure that we were working with an ENT, as well as an eye doctor. At this point, we're looking at having annual exams with them and other appointments as needs arise.

We also discussed Rebekah's eating and whether she was still using her G-Tube or if we were ready to have it removed. His goal would be to have it removed by a year or 15 months post treatment if possible (February or May 2007). We will see. As much as I would love to be rid of it now, we still need it. I'm actually seeing some weight gain (maybe a pound) in the last month and a half or so. Despite that, she is at the 50th percentile for weight so I guess I shouldn't complain.

All in all, it was a good meeting and we were relieved with the good scans.

We also found out today that Rebekah's cousin Michael's tests came back with no particular concerns. While that is good news, they are still in a "wait and see" mode which we know can be incredibly frustrating.

A while back Mommy bought some Dora socks and Dora underwear for both girls to be used as "rewards" for potty training. For a while, I've been telling the girls that if they keep their pullups dry all day long then they can pick a pair of Dora socks or Dora underwear. Yesterday, one of the girls kept her pullup dry all day long (even through nap time) until the very last change before bed. Oh was she close. Today, the same girl kept hers dry with the exception of bowel movements and the other one kept hers dry until our trip home from the hospital late this afternoon. Did I need to by the boxes of pullups that I purchased at Costco today? If not (and we can hope not), they can always be returned. I'll let you guess which of the girls did what.

We moved speech therapy to before school on Tuesdays (starting today) because Rebekah wasn't cooperating very well when it was after school. She did much better today and did a great job of staying at task with it. So it looks promising.

Gage started his chemo last week. Please pray with his family that the Leukemia go into remission quickly, that a donor will be found quickly, for healing for Gage and peace and comfort for his parents as they make decisions and stay strong for Gage.

10 Shared:

At Wednesday, November 15, 2006 8:40:00 AM, Anonymous Anonymous Left a thought...

What a wonderful way to start the day!
Wyla

 
At Wednesday, November 15, 2006 10:41:00 AM, Blogger Carol Warlick Left a thought...

What terrific news. It's also wonderful to hear that they are both doing so well at keeping their pullups dry. That's a big accomplishment. I will pray an extra prayer that they are able to stay dry and pick a Dora prize soon! It appears that Grandma was successful at teaching Rebekah and Sarah CHEESE! Thank you for sharing the pictures, the girls are growing and changing so much. I continue to pray for each of you and you are always in my thoughts.

 
At Wednesday, November 15, 2006 2:12:00 PM, Anonymous Elaine Spidal Left a thought...

Praise God for such good news!! What a journey this has been but how wonderful it is to share with others your faith, hope and trust in our Lord. May you continue to be encouraged as you are a true encouragement to others...We would love to see you all soon!!!! Elaine Spidal and family

 
At Thursday, November 16, 2006 3:57:00 AM, Blogger jel Left a thought...

This is great news !!!

will send a pray up for Gage!


Blessings

 
At Thursday, November 16, 2006 6:01:00 PM, Blogger My Kid's Mom Left a thought...

I'm thrilled with your news!!! You give Rebekah a HUGE hug for me, OK?

 
At Saturday, November 18, 2006 12:04:00 AM, Blogger The other me Left a thought...

HOw wonderful to come to Rebekahs blog and see such great news, beautiful cheeky pictures and the HAIR! beautiful girls. We are on the potty train here too, it has taken ELijah forever but we think he may have grasped it at last !

 
At Saturday, November 18, 2006 9:37:00 PM, Blogger JodiTucker Left a thought...

Great news!!!!

 
At Tuesday, November 21, 2006 7:48:00 AM, Blogger benny Left a thought...

Hello Christine,
I can understand in a sort of way the anguish, hope and questions that go through you. Nothing that I say would make it any easier. But i see that daily struggle must go on and you are there to give Rebekah that on day to day basis.
Learn to take each day as new. You can face upto the heat if you don't pile it up with what if? Instead think what if a medical breakthrough or a miracle should happen? We are still on uncharted territory here as far as these afflictions occur.
Therefore I do not think is for the glory of anyone in particular. But accidents that may come over any human being have to be faced with every resource avaiable prayer etc. helps. Though a stranger, feel that my thoughts do go to little Rebekah. A prayer for strength and courage as never before and a healing that love and care of a mother could work.
benny

 
At Tuesday, November 21, 2006 11:32:00 AM, Anonymous Anonymous Left a thought...

YIPPEEE!!! So glad to hear some good news for a change! Love, Suzanne in Ohio

 
At Wednesday, November 22, 2006 10:07:00 PM, Blogger Janean Left a thought...

Followed a link on a blog from Ireland and found you live just about 30 miles from me!
I have a little girl with the same name and about the same age as your little onw with all the challenges.
Please know that you are in my prayers. If there is anything I can do, please email! I would love to help.

 

Post a Comment


Thank you from Rebekah...

Back to Rebekahs home page...