Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Friday, July 29, 2005



First Week of Radiation is Complete

When we woke Rebekah up this morning, her fever seemed to be gone (or at least diminished). Mom didn't think it was necessary to check her temperature this morning based on how she felt and on the fact that they always check her temperature before starting radiation. When they checked at radiation, her temperature was just about her normal. Please pray that the fever stays away...

Radiation went ok today. Rebekah woke up pretty grumpy from it this morning - worse than she has been - and was pretty crabby. She fell asleep in the car on the way home - which was probably a good thing.

The Radiation Oncologist said that everything seems to be staying lined up. He was a little concerned about whether her mask would keep her from moving around. With little kids (who don't have big noses or chins to keep them in the same position) it can be an issue. The Xrays and Cat Scan they did this week all show her in very close to the same position - I think he said within .03mm which is "very good". Typically on Fridays the Radiation Oncologist will check in with each of his patients and make sure everything is going ok.

Sarah went with us this morning and friend Debbie and her daughter Kelsey met us and cared for Sarah at Radiation. Kelsey let Sarah walk all around - which she loved. It was great to have them both help! Thanks much!

We made it home about 8:45 this morning. After yesterday, it seemed really early. Because she has anesthesia each morning she can't eat or drink anything after midnight or so and I don't want her to have food right after waking up from the anesthesia either so it isn't until we get home that she can eat. Rebekah has been doing really well the last few nights with not having water in bed with her. She has a flouride toothpaste (to protect her teeth from the radiation) that she uses before going to bed and she can't have food or drink right afterward and then fluids have to be cut off when Mom and Dad go to bed anyway. The last two nights she hasn't even asked for the water. Yeah! It is really tough to tell her no.

Once home, Rebekah didn't want to sit in her chair to eat. Instead, she wanted to sit in Mom's lap and eat. She did a pretty good job of eating Cinnamon Life cereal with milk. Mom told her that if she sat in her own chair she could feed herself, but if she sat in Mom's chair or Mom's lap then Mom would feed her (she is really messy with milk in her cereal). Nonetheless, she wanted to sit in Mom's lap.

She would eat a few bites and then get some cereals for Sarah (who was eating Cinnamon Life, too). She would get her own cereal out of the box and help Mom pour more milk into the bowl. She sat for a long time eating and ate quite a bit (at least in comparison to the last few days). Sarah ate quite a bit, too.

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